Sometimes you just need a good cry.
Every time I've tried to talk to anyone about my health lately I've ended up in tears before I can even really say anything. I'm in a pretty bad place with Narcolepsy right now. I've been going downhill for months and my neurologist is basically out of ideas, which makes me feel pretty helpless. I'm having more and more trouble doing the work for my increasingly fewer classes and I'm sleeping worse as the nights go on. I feel like I'm fighting an uphill battle and losing ground every day. To say I'm scared would be an understatement.
At the same time my life is changing for the better. I've been able to make plans to move out of my parents house (which I was seriously worried I would still be living in at the age of 35) to start a life with my girlfriend (who we have already established is the best person ever). It's such a wonderful emotional thing, and my health is such a terrible emotional thing that between the two I've felt like I've been on an emotional rollercoaster all day.
I talked to my mom this morning and my dad when he got home from work. Both parents are ecstatic about the plans and worried about the health. I had a heart to heart with my dad on the way home from dinner about how bad my Narcolepsy is getting and how helpless I feel in the face of it. When we got home he gave me the tightest hug in a long time and told me he loves me. I was already crying, but I lost it even more because I'm so damned lucky to have the parents that I have. I headed straight for the shower and cried my eyes out for awhile. I actually let all my feelings about my health come out for once; most of the time I shove the panic down and try to ignore it, to pretend like I can handle this.
My inner therapist is telling me that I need to learn to accept the lack of control. I think that's one of the major things I can learn from this illness... that I need to let things happen sometimes instead of getting caught up in frustration and disappointment when I can't change how I feel. But I'm so not there yet. At least the people around me are the best people in the world, and because of that I know everything will turn out okay.
Friday, November 6, 2009
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