Well, my latest attempt to raise my Xyrem dose has (not surprisingly) backfired. I only raised it one little increment on one of the three doses, and it did help me sleep for about a week. But then I got my usual side effects back- anxiety and lack of appetite- and had to lower it again. It's made me uptight and tense, so it was a relief to wake up this morning feeling a little bit back to normal. I'm pretty cheerful today.
I'm so glad that I went ahead and dropped two of my classes. I've had a chance to rest and after a couple of weeks of falling behind I'm actually ahead in my one remaining class. I'm also no longer finding it hard to keep things clean, I have the energy to make myself food again and I haven't missed a single walk with my dog. Since regaining the energy to take care of my daily life was the point of dropping classes, I think it's been worth it.
At the same time, as I get ready to leave the school, I've been a little sad about it. I've had a good time there and learned a lot of very useful information. Part of me does want to finish this degree, but I know it doesn't make sense practically. Last March, I was taking four intense classes- two of them with the hardest drawing instructor in the school- and easily taking the stairs up to the fifth floor almost every day. Yesterday I went to school to sort through some photos and print some things out. I was there for maybe two hours- more like one and a half- and I needed a nap by the end. One of the elevators was broken, so it was a long wait for the other one. I took the stairs up to the fifth floor for the first time in months. It took all that I had- I leaned heavily on the handrail and went very slowly. It really impressed on me how much worse I've gotten, and I have no way of knowing when I'm going to get feeling better. That's why I need to leave the school, because I just don't have the energy anymore.
I wish I could say for sure that I'll be coming back. But the reality is that it could be years before I'm really able to, and by then life might have taken me somewhere else. Or it could be just one quarter that I'm gone, who knows. We'll just have to see.
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