Well, the past couple of weeks my nightmares have been getting a lot worse again, but at least I have lots of furry moral support.
Last night it was tornadoes. I was a passenger in my mom's car, driving down the highway towards the beach in the area where I grew up. My mom was driving us to a hospital where she was going for work and I had tagged along. As we drove, the cloudy sky darkened menacingly, the deep grey clouds heavy and wet. It began to pour. We were almost there- I could see across the flat, grassy fields to the hospital complex, its windows lit up against the blackened sky. My mom cursed at the rain. On the horizon I saw one of the cloudy masses dip down to connect with the ground, swirling chaotically.
We sped into the parking garage of the hospital, and then suddenly we were in a big, well-lit open lobby surrounded by glass windows. The place was pretty empty, which made sense to me, because I now knew we were there to help shoot a movie. We power-walked through a dim hallway into what looked like an office. A bunch of people with cameras and boom mics and who looked like actors were hanging around there. There was an old golden retriever and a French bulldog who was wearing a frilly pink collar, apparently also ready for a part in the movie.
As the crew was setting things up, I looked out of the window and watched the heavy rain streak down the glass against the dark night. I leaned over to look straight down, and saw a small tornado headed right for the building we were in, about to take out the structure below us. I started shouting and yelling for all the people to run for the door at the opposite end of the suddenly large room.
I grabbed my mom's hand and we got through the crowded doorway, running in the group away from that side of the floor. I was terrified. I was pretty sure we were going to die.
We ran past a long wall of windows that faced one of the other buildings in the complex. As I watched, still running, the building folded in on itself and crashed to the ground in a pile of rubble, sheetrock dust rising, showing its insides. It looked straight out of 9/11 footage. I was scared and upset. We reached, suddenly, a giant open area that looked like a multi-level shopping mall, packed with people. We skidded to a stop, trying to figure out which way to go- four hallways split off. But suddenly, a deathly fire glow came shooting out of three of them, and everyone in there started screaming. We turned into the fourth hallway, which looked like it was underground. It turned into the hallways in a Japanese subway station.
I began to have hope that we might escape. And then, quite suddenly, I wasn't running for my life anymore, but blinking up at the ceiling of my bedroom.
Over the past week, as the dreams have gotten especially bad, one of our cats has started sleeping right next to me, leaning on me as if to offer comfort, as if she knows I need a hug. Normally, she's quite an elusive character and sometimes you can go all day without seeing her. Also, if you get up to go to the bathroom, she'll jump up from the bed as if offended, tail-twitching, and stalk off to the other room for the rest of the night. But this past week, instead she stays by me. She'll wait until I come back and get under the covers again, and then snuggle up close as soon as I'm comfortable.
I know she's doing it on purpose. In college, one of my housemates was having a really hard time, and this cat was always in her room next to her when she was home. The cat would sleep on top of her at night. It helped a lot. Now I think she's offering me the same favor.
Living with my girlfriend helps me a lot, even though she's a hard sleeper, because just having someone next to me makes me feel less afraid when I wake up in the night. Having our cat right against me is like getting a hug just when I need it. As soon as I wake up, she'll turn to look at me with sleepy eyes, whether or not I've moved yet, as if to ask, "Are you okay?"
Thank God for kitties. <3
Showing posts with label coping. Show all posts
Showing posts with label coping. Show all posts
Tuesday, February 8, 2011
Friday, January 14, 2011
My Narcolepsy Themed Art
Or, "Wolfies and Demons". :D
I got a comment from a fellow artist requesting that I post some art, and as I have been halfway planning to do this for some time, I figure, why not now? A lot of my art is quite relevant to this blog, as I'm constantly drawing things about my dreams and daily experiences with Narcolepsy, and those are the pieces I'm posting here. I find expressing the insanity and frustrations of my illness is a great way to cope. Also, the more humorously I express my feelings, the better I come to feel about the entire thing.
One thing that you have to know before you look at my art is that I'm an anthro or "furry" artist. That means I draw very character-driven art, and that my characters are half-human, half-animals. Furry art is pretty different from the mainstream, so I feel I have to explain it a little. Most furry artists have a "fursona," or furry character that represents themselves, and I am no exception. I almost always draw myself as a wolf person or werewolf (hence my blog pseudonym, "Wolfie"). My art is also quite cartoony, as per furry tradition, though not always as I also have quite a bit of classical training.
Also, you will see the signature along the bottom of each piece is blocked out. This is purely protective of my identity as I always put my real name there after scanning in my work. However, I want this blog to remain anonymous and separate from my other online identities for privacy reasons.
So, without further ado!
About the meds:
These two are both about Xyrem, and feeling like a nutcase for being on something so strong. I'm glad that these don't apply anymore, since I'm happy for now with just the Remeron.
About the Demon:
In addition to having a little wolf character who represents me, I also have a frightening demonic character who represents Narcolepsy itself. I heard a song once that had the line "like demons playing movies in my head" or something similar, and though I still can't find the song again, it made a big impression on me. I think that line is the best description I've found of what I experience when my brain throws dream/nightmare/hallucinations at me. And so, this is the demon who plays movies in my head.
Here's one of my more humorous drawings, of the demon kicking me in the butt. XD
In addition to frightening nightmares, I also have some pretty sweet vivid dreams that I like, so in this cg painting I was trying to express the interplay between the good dreams and bad. The white wolf-creature is a personification of the good things about my dreams, and is battling the nightmare-demon.
I've also been making dreamcatchers for a very long time (early attempts at preventative measures, lol), and this one I made with the above painting in mind:
The inner circle is about good dreams, and includes perfect weaving, pretty little trinkets (including a bell to represent sound), and shiny white ribbon. The outer circle is about nightmares, with uneven weaving and black leather, also interwoven with strange little objects. The hanging part incorporates both dirty bones and pristine white fluffy feathers, to show the intertwining of beautiful and disturbing that regularly shows up in my dreams.
Images From Actual Dreams I've Had:
I saw this dreamcatcher hanging in a room (well, my bedroom, actually) that was dripping with pipes covered in moss. When I woke up I jotted down the design, then actually made it to the best of my ability.
I dream about human skeletons a lot, which is unfortunate because I have a silly phobia of them. I don't know if the phobia of skeleton images came before or after dreaming about stumbling across them in my dreams, but weirdly, they seem to be everywhere in my dreamscapes. Whatever it means, I was excited to take an anatomy class a year or two ago and learn how to draw them so that I could a) attempt to overcome my fear and b) actually record some images from dreams that included them.
This piece is a combination of all the hallucinations I could remember having in high school in my old bedroom. It's actually a pretty clear pen drawing, but I like this blurry photograph of it more- it makes it more disturbing. :D And thus gives it more the feel that I wanted.
I also have some really cool beautiful dreams, from which single images have stood out so much that I've felt inspired.
The Baku:
And lastly, I recently discovered this awesome Japanese folklore creature that eats nightmares. I painted him on a piece of wood because I thought he was really cool, and, let's face it, I need all the help I can get, right? XD
The verse is from a song ("Darkness, Darkness" by Solas) and reads:
Darkness, darkness, be my pillow
Take my hand and let me sleep
In the coolness of your shadow
In the silence of your deep
And so, there you are. I have other pieces, but I figure this is long enough as it is. I'm sure there will be more later.
I got a comment from a fellow artist requesting that I post some art, and as I have been halfway planning to do this for some time, I figure, why not now? A lot of my art is quite relevant to this blog, as I'm constantly drawing things about my dreams and daily experiences with Narcolepsy, and those are the pieces I'm posting here. I find expressing the insanity and frustrations of my illness is a great way to cope. Also, the more humorously I express my feelings, the better I come to feel about the entire thing.
One thing that you have to know before you look at my art is that I'm an anthro or "furry" artist. That means I draw very character-driven art, and that my characters are half-human, half-animals. Furry art is pretty different from the mainstream, so I feel I have to explain it a little. Most furry artists have a "fursona," or furry character that represents themselves, and I am no exception. I almost always draw myself as a wolf person or werewolf (hence my blog pseudonym, "Wolfie"). My art is also quite cartoony, as per furry tradition, though not always as I also have quite a bit of classical training.
Also, you will see the signature along the bottom of each piece is blocked out. This is purely protective of my identity as I always put my real name there after scanning in my work. However, I want this blog to remain anonymous and separate from my other online identities for privacy reasons.
So, without further ado!
About the meds:
These two are both about Xyrem, and feeling like a nutcase for being on something so strong. I'm glad that these don't apply anymore, since I'm happy for now with just the Remeron.
About the Demon:
In addition to having a little wolf character who represents me, I also have a frightening demonic character who represents Narcolepsy itself. I heard a song once that had the line "like demons playing movies in my head" or something similar, and though I still can't find the song again, it made a big impression on me. I think that line is the best description I've found of what I experience when my brain throws dream/nightmare/hallucinations at me. And so, this is the demon who plays movies in my head.
Here's one of my more humorous drawings, of the demon kicking me in the butt. XD
In addition to frightening nightmares, I also have some pretty sweet vivid dreams that I like, so in this cg painting I was trying to express the interplay between the good dreams and bad. The white wolf-creature is a personification of the good things about my dreams, and is battling the nightmare-demon.
I've also been making dreamcatchers for a very long time (early attempts at preventative measures, lol), and this one I made with the above painting in mind:
The inner circle is about good dreams, and includes perfect weaving, pretty little trinkets (including a bell to represent sound), and shiny white ribbon. The outer circle is about nightmares, with uneven weaving and black leather, also interwoven with strange little objects. The hanging part incorporates both dirty bones and pristine white fluffy feathers, to show the intertwining of beautiful and disturbing that regularly shows up in my dreams.
Images From Actual Dreams I've Had:
I saw this dreamcatcher hanging in a room (well, my bedroom, actually) that was dripping with pipes covered in moss. When I woke up I jotted down the design, then actually made it to the best of my ability.
I dream about human skeletons a lot, which is unfortunate because I have a silly phobia of them. I don't know if the phobia of skeleton images came before or after dreaming about stumbling across them in my dreams, but weirdly, they seem to be everywhere in my dreamscapes. Whatever it means, I was excited to take an anatomy class a year or two ago and learn how to draw them so that I could a) attempt to overcome my fear and b) actually record some images from dreams that included them.
This piece is a combination of all the hallucinations I could remember having in high school in my old bedroom. It's actually a pretty clear pen drawing, but I like this blurry photograph of it more- it makes it more disturbing. :D And thus gives it more the feel that I wanted.
I also have some really cool beautiful dreams, from which single images have stood out so much that I've felt inspired.
The Baku:
And lastly, I recently discovered this awesome Japanese folklore creature that eats nightmares. I painted him on a piece of wood because I thought he was really cool, and, let's face it, I need all the help I can get, right? XD
The verse is from a song ("Darkness, Darkness" by Solas) and reads:
Darkness, darkness, be my pillow
Take my hand and let me sleep
In the coolness of your shadow
In the silence of your deep
And so, there you are. I have other pieces, but I figure this is long enough as it is. I'm sure there will be more later.
Tuesday, January 4, 2011
Why Soy Is Not For Me
I'm sure I've written about my soy intolerance before, but having a distinct lack of brain these days, I have no memory of the entry whatsoever. But, as soy is continuously making life irritating (or in my case, freaked out anxious) for me, I figure it's safe to repeat my feelings on the subject.
I got up this morning feeling much better and less gunky. The cold is mostly gone, and because of the lack of headache and the renewed ability to breathe, I actually slept pretty well last night. Aside from multiple dreams about almost drowning, that is, but what's new? So I woke up feeling (for me) refreshed and like I might be able to walk the dogs or clean the floors today- both things that really need to be done. I had a little bit of caffeine in my tea to get me going as usual, a smaller amount since my normal energy level is on its way to being restored.
My girlfriend is also almost recovered from the cold today, so she made breakfast for us both, an experiment with new hot cereal. She put flax and chia seeds in it and a little honey and rice milk. It tasted pretty good, but I didn't eat much of it because there wasn't a lot in the pan, and after the fact I can say I'm really glad.
Since I accidentally became mostly Buddhist (see previous entries), I've been paying lots of attention to my own body and emotional states. I feel like by intentionally watching myself, I notice when I'm being a jerk or neurotic or getting excessively angry, and because I can see it as it's happening I can change course before I do any real damage. This comes in handy when you have a mental or even physical problem in your body because you know right when you run out of energy, or you can see past anxiety and find its cause, and possibly find relief.
Well, as soon as I finished my little bowl of the cereal, my heart sped up and I got tense. My thoughts derailed into a roller coaster of "OMG I HAVE ALL THIS STUFF TO DO AAAAAAAAHHHH!!!" and my shoulders were like a rock. It took me a minute to make the connection, but it was pretty obvious, as this is exactly what always happens the minute I eat even traces of soy. Honestly, I've never met anyone else with this reaction to soy, but it's listed as one of the eight major allergens, so it must do something to a lot of other people. You can imagine how nuts I was going between when soy began to have this effect on me and when I figured out the cause: for most of a year I was constantly freaking out (I got diagnosed with generalized anxiety disorder by a therapist I was seeing) and finding ten other things to blame it on. Anxiety can be caused by so many things, including just life and stress, that it's hard to pin down. And it wears you out so bad, which sucks when you already have a much lower energy level than most of the people around you. At the time, taking Xyrem was also not helping the situation.
As a usually pretty relaxed person, the reaction I have to soy is pretty extreme, so I can usually tell as I'm eating whatever it is. The pain I get from eating gluten happens similarly quickly, which is nice because it means these days I rarely eat a lot of either substance before figuring out I need to stop. But as someone who has to avoid both gluten and soy, it's tough. At least half of the new tasty-looking things I find labeled gluten-free at the grocery store turn out to have soy in them. Before I could cook very well, it was murder. You find delicious-looking cookies only to see that lovely "CONTAINS: SOY" on the back, and anything containing chocolate you can forget.
I have to say, life is much easier since the required allergen labeling came into effect. Wheat and soy both have to be declared really obviously on the label, and it's handy. It used to be I would get something that looked perfectly safe and try it, and have to have one or both types of reaction before knowing it "may contain traces". Since the labels changed I've seen a huge decrease in how often I have gluten or soy reactions, and at least nowadays it's usually my fault for misreading the label.
And, because I know the suspense is killing you, yes, it seems the chia seed came from a "facility that also processes products containing soy", which explains it nicely. Time to go raid the fridge for a better breakfast...
I got up this morning feeling much better and less gunky. The cold is mostly gone, and because of the lack of headache and the renewed ability to breathe, I actually slept pretty well last night. Aside from multiple dreams about almost drowning, that is, but what's new? So I woke up feeling (for me) refreshed and like I might be able to walk the dogs or clean the floors today- both things that really need to be done. I had a little bit of caffeine in my tea to get me going as usual, a smaller amount since my normal energy level is on its way to being restored.
My girlfriend is also almost recovered from the cold today, so she made breakfast for us both, an experiment with new hot cereal. She put flax and chia seeds in it and a little honey and rice milk. It tasted pretty good, but I didn't eat much of it because there wasn't a lot in the pan, and after the fact I can say I'm really glad.
Since I accidentally became mostly Buddhist (see previous entries), I've been paying lots of attention to my own body and emotional states. I feel like by intentionally watching myself, I notice when I'm being a jerk or neurotic or getting excessively angry, and because I can see it as it's happening I can change course before I do any real damage. This comes in handy when you have a mental or even physical problem in your body because you know right when you run out of energy, or you can see past anxiety and find its cause, and possibly find relief.
Well, as soon as I finished my little bowl of the cereal, my heart sped up and I got tense. My thoughts derailed into a roller coaster of "OMG I HAVE ALL THIS STUFF TO DO AAAAAAAAHHHH!!!" and my shoulders were like a rock. It took me a minute to make the connection, but it was pretty obvious, as this is exactly what always happens the minute I eat even traces of soy. Honestly, I've never met anyone else with this reaction to soy, but it's listed as one of the eight major allergens, so it must do something to a lot of other people. You can imagine how nuts I was going between when soy began to have this effect on me and when I figured out the cause: for most of a year I was constantly freaking out (I got diagnosed with generalized anxiety disorder by a therapist I was seeing) and finding ten other things to blame it on. Anxiety can be caused by so many things, including just life and stress, that it's hard to pin down. And it wears you out so bad, which sucks when you already have a much lower energy level than most of the people around you. At the time, taking Xyrem was also not helping the situation.
As a usually pretty relaxed person, the reaction I have to soy is pretty extreme, so I can usually tell as I'm eating whatever it is. The pain I get from eating gluten happens similarly quickly, which is nice because it means these days I rarely eat a lot of either substance before figuring out I need to stop. But as someone who has to avoid both gluten and soy, it's tough. At least half of the new tasty-looking things I find labeled gluten-free at the grocery store turn out to have soy in them. Before I could cook very well, it was murder. You find delicious-looking cookies only to see that lovely "CONTAINS: SOY" on the back, and anything containing chocolate you can forget.
I have to say, life is much easier since the required allergen labeling came into effect. Wheat and soy both have to be declared really obviously on the label, and it's handy. It used to be I would get something that looked perfectly safe and try it, and have to have one or both types of reaction before knowing it "may contain traces". Since the labels changed I've seen a huge decrease in how often I have gluten or soy reactions, and at least nowadays it's usually my fault for misreading the label.
And, because I know the suspense is killing you, yes, it seems the chia seed came from a "facility that also processes products containing soy", which explains it nicely. Time to go raid the fridge for a better breakfast...
Monday, November 30, 2009
Thank God For My Girl... And The Caffeine
I had an amazing visit with my girlfriend this weekend. It was fantastic to see her and we had a great time. She's the only person who has ever really understood me and been okay with my limitations and challenges. We spent a lot of time curled up on the couch, watching movies, because I'm so tired. We did take my dog to the park one day, which totally flattened me for that day and the next, but she was very helpful and loving and understanding about my lack of energy. This is especially impressive because of the fact that she's high energy by anyone's standards.
On Sunday we went to the nearest bookstore. I sat down in the cafe with my caffeine fix and read dog magazines while she ran around looking at books. She came back every so often to check up on me, and it kept us both entertained without draining me. I think once she moves here (a torturous six months from now) we'll do that more often.
Of course she had to go home though, and it hit me pretty hard. As soon as she left this morning I hit the couch and turned on the tv to keep my mind off of it. I already miss her a lot. I probably would have just spent all day pining if I hadn't figured out I was feeling depressed. Instead caffeine saved me again and I'm feeling much better. Talking to her when she gets home will also help. I'm shocked and amazed when I think about how lucky I am to have someone who cares so much.
Not to mention she's a really good cook. I got leftovers for lunch. :D
On Sunday we went to the nearest bookstore. I sat down in the cafe with my caffeine fix and read dog magazines while she ran around looking at books. She came back every so often to check up on me, and it kept us both entertained without draining me. I think once she moves here (a torturous six months from now) we'll do that more often.
Of course she had to go home though, and it hit me pretty hard. As soon as she left this morning I hit the couch and turned on the tv to keep my mind off of it. I already miss her a lot. I probably would have just spent all day pining if I hadn't figured out I was feeling depressed. Instead caffeine saved me again and I'm feeling much better. Talking to her when she gets home will also help. I'm shocked and amazed when I think about how lucky I am to have someone who cares so much.
Not to mention she's a really good cook. I got leftovers for lunch. :D
Friday, November 20, 2009
Anger Management
I don't look particularly threatening. I mean, I'm a short and skinny person who looks about 14 despite being about ten years older, who has a fondness for animated movies and likes to belt out Backstreet Boys lyrics while driving along in her car. I have a nice collection of stuffed animals for God's sake, and the silliest looking little dog ever. I've been described as cute in multiple languages, and adorable, and people I don't know are constantly asking me what grade I'm in.
So you would think I would be more or less harmless, but that just means you haven't seen me when I get angry.
It doesn't happen very often. Most of the time I take things in stride, or else get upset rather than angry. The result of this, though, is that it slowly builds up, so that when I do explode I don't see it coming. It seriously seems to me, after the fact, that it comes up suddenly out of nowhere and the anger just takes over. I start shouting and throwing things, and storming around and kicking the furniture. It's a little frightening for me because I'm used to being in control of myself, avoiding any and all conflict by just not saying anything, but then I turn into this total monster for a good five minutes every couple of months.
Most of the time it doesn't effect anyone else. I keep it hidden, try to contain it, to get out later when I'm alone and can throw my sandals at the dresser or rip pieces of paper into tiny shreds. But two days ago I was talking to my girlfriend on the phone when it happened, and I lost control of myself again. I think it flared up around her because we're so close, and I feel safe around her almost like I'm alone, if that makes sense. I'm very, very lucky that she didn't dump me then and there. There is no excuse for my behavior. Plenty of reasons, but none of them justify the hurt I inflicted with my outburst. Part of it was definitely related to frustration with my parents at the moment. Part of it was probably being hungry, or exhausted, or the fact that my dad came home early without warning that day, interrupting my peace and quiet. It had to do with my girlfriend recounting her bad day, and me being upset that her day was bad too. But whatever the reasons for it, it was wrong and I hurt the person I love the most.
I've always made excuses for it, because I do have a lot of good reasons to be angry, not the least of which is having a misunderstood medical condition that makes me look like an idiot a lot of the time. I've had shouting matches with my parents before that hurt everyone involved, so it isn't a new issue. But now is the time to find a better outlet, or at least gain enough control over my emotions to not hurt someone else. For one thing, I'm planning on figuring out how to spot the buildup before the explosion- that way I give myself time to get away from anyone else before I let it all out. I also need to find a way to let it out more frequently in smaller amounts, because I think that would make my life better anyway- tucking it all away can't be good for me. I'm glad, to a certain extent, that something happened to bring the whole thing into perspective, even though it sucked. Now at least I can work on it.
So you would think I would be more or less harmless, but that just means you haven't seen me when I get angry.
It doesn't happen very often. Most of the time I take things in stride, or else get upset rather than angry. The result of this, though, is that it slowly builds up, so that when I do explode I don't see it coming. It seriously seems to me, after the fact, that it comes up suddenly out of nowhere and the anger just takes over. I start shouting and throwing things, and storming around and kicking the furniture. It's a little frightening for me because I'm used to being in control of myself, avoiding any and all conflict by just not saying anything, but then I turn into this total monster for a good five minutes every couple of months.
Most of the time it doesn't effect anyone else. I keep it hidden, try to contain it, to get out later when I'm alone and can throw my sandals at the dresser or rip pieces of paper into tiny shreds. But two days ago I was talking to my girlfriend on the phone when it happened, and I lost control of myself again. I think it flared up around her because we're so close, and I feel safe around her almost like I'm alone, if that makes sense. I'm very, very lucky that she didn't dump me then and there. There is no excuse for my behavior. Plenty of reasons, but none of them justify the hurt I inflicted with my outburst. Part of it was definitely related to frustration with my parents at the moment. Part of it was probably being hungry, or exhausted, or the fact that my dad came home early without warning that day, interrupting my peace and quiet. It had to do with my girlfriend recounting her bad day, and me being upset that her day was bad too. But whatever the reasons for it, it was wrong and I hurt the person I love the most.
I've always made excuses for it, because I do have a lot of good reasons to be angry, not the least of which is having a misunderstood medical condition that makes me look like an idiot a lot of the time. I've had shouting matches with my parents before that hurt everyone involved, so it isn't a new issue. But now is the time to find a better outlet, or at least gain enough control over my emotions to not hurt someone else. For one thing, I'm planning on figuring out how to spot the buildup before the explosion- that way I give myself time to get away from anyone else before I let it all out. I also need to find a way to let it out more frequently in smaller amounts, because I think that would make my life better anyway- tucking it all away can't be good for me. I'm glad, to a certain extent, that something happened to bring the whole thing into perspective, even though it sucked. Now at least I can work on it.
Friday, November 13, 2009
Dropping
Today I went up to my school and dropped two of my three classes. I was stressed out all morning, dreading it. It was pretty quick and easy, but I still feel really guilty about it for some reason.
It's not that I think I'm not doing the right thing. I already feel a lot less stressed out knowing that I just have one class to keep up with now. It really was too much and there's no doubt about that. It's just hard for me to let go sometimes, especially when I'm doing well in a class despite everything. Plus I'm a little worried I'm going to get crap for it or something, which is silly because I do have the best reasons ever.
I still have to sort out not coming back next quarter, but fortunately it turns out I can do it any time between now and the end of the quarter. That gives me a little bit more time to recover before I tackle the next hurdle.
I have been talking to my parents about it, and they reacted more or less exactly how I predicted, with my mom freaking out and resistant at first, but then getting it after a lot of explanation, and my dad taking it in stride. My parental drama now has to do with how worried they are about the state of my health.
It's not surprising. I mean, they really care about me and sincerely want me to feel better, and I do appreciate that- a lot. But it can be stifling- they want to direct everything, and get more involved than I really want them to be. Part of it probably comes from living with them still. Right now I'm just trying to get myself a little bit of space, and do some recovering before I go back to my neurologist. My parents wanted me to make an appointment as soon as possible, but I think that's rushing things. I want to see what effect, if any, not having classes to get to and get through and stress out about has on my health first. I really think I'll get feeling better in the next couple of weeks without doctor intervention. Also, I need my slightly raised Xyrem dose to settle out so I can tell if it helps or my side effects come back. Basically they want to rush over there and start interrogating my doctor about how we're going to fix me, and I just want to coast along and see how I feel. I think my parents still have this idea of a healthy me that may never actually happen. I have Narcolepsy, and I know that I may always have this interfering with my life. I'm okay with that at this point- I'm beginning to accept the idea of making the most of the situation instead of trying to live as if I don't have a chronic condition. I think my parents aren't quite there yet.
I'm really really grateful for their support and how much they care. But I'm also glad that my girlfriend agrees with me and supports my view of the situation. I might have mentioned that I have the best person in the universe as my girlfriend, so it's thoroughly unfair to compare my parents to her. It does mean that in the future life will most likely involve less freaking out, at least about this stuff, which is something I'm very happy about.
It's not that I think I'm not doing the right thing. I already feel a lot less stressed out knowing that I just have one class to keep up with now. It really was too much and there's no doubt about that. It's just hard for me to let go sometimes, especially when I'm doing well in a class despite everything. Plus I'm a little worried I'm going to get crap for it or something, which is silly because I do have the best reasons ever.
I still have to sort out not coming back next quarter, but fortunately it turns out I can do it any time between now and the end of the quarter. That gives me a little bit more time to recover before I tackle the next hurdle.
I have been talking to my parents about it, and they reacted more or less exactly how I predicted, with my mom freaking out and resistant at first, but then getting it after a lot of explanation, and my dad taking it in stride. My parental drama now has to do with how worried they are about the state of my health.
It's not surprising. I mean, they really care about me and sincerely want me to feel better, and I do appreciate that- a lot. But it can be stifling- they want to direct everything, and get more involved than I really want them to be. Part of it probably comes from living with them still. Right now I'm just trying to get myself a little bit of space, and do some recovering before I go back to my neurologist. My parents wanted me to make an appointment as soon as possible, but I think that's rushing things. I want to see what effect, if any, not having classes to get to and get through and stress out about has on my health first. I really think I'll get feeling better in the next couple of weeks without doctor intervention. Also, I need my slightly raised Xyrem dose to settle out so I can tell if it helps or my side effects come back. Basically they want to rush over there and start interrogating my doctor about how we're going to fix me, and I just want to coast along and see how I feel. I think my parents still have this idea of a healthy me that may never actually happen. I have Narcolepsy, and I know that I may always have this interfering with my life. I'm okay with that at this point- I'm beginning to accept the idea of making the most of the situation instead of trying to live as if I don't have a chronic condition. I think my parents aren't quite there yet.
I'm really really grateful for their support and how much they care. But I'm also glad that my girlfriend agrees with me and supports my view of the situation. I might have mentioned that I have the best person in the universe as my girlfriend, so it's thoroughly unfair to compare my parents to her. It does mean that in the future life will most likely involve less freaking out, at least about this stuff, which is something I'm very happy about.
Sunday, October 25, 2009
Every Time is Naptime!
Well, the day after my failed Ritalin experiment was awesome. It was like night and day, haha. I still had my usual amount of no energy, but it was so much better than the day before that I felt like I was doing great. I'm really glad the depression wore off so fast. It was also nice because the weather was awesome for my photography homework.
A couple of days later, though, and I'm back to the every time is naptime routine. On Friday my mom was home, and since she had lots of errands to run I went with her. It worked out really well, actually, because we would chat about stuff as she drove, then when we got somewhere she left me in the car to nap while she went in. So I didn't get too tired and so got a lot done, haha. There were a couple of parking lots where I felt kind of self-conscious sleeping. I mean, it's not like we were in a bad part of town or something, but it is kind of weird to be napping in your car, especially when you're pretty obviously over the age of 10. Luckily I've now officially mastered the ability to nap while still aware of my surroundings, so it wasn't unsafe. I bet I confused some random passersby, though, haha.
Speaking of confusing people, lol, last week in my photography class another student kept questioning me on why I take naps during every break. That class is pretty intense, so in order to get through the entire four hours without missing half the information I have to put my head down when I can. He kept questioning until I finally just told him that I'm really tired all the time. I don't like pulling out the word Narcolepsy. Either people think it's something it's not or they've never heard of it. I know I'm not helping to educate people and spread the word, but it's a pretty personal thing to me and I'd really rather not spread it around that I have this disabling illness. It's like, too much information to people I don't know. Plus there's the fact that I'm just too damn tired to explain all this crap. So I brush them off instead and let them wonder why I'm constantly napping.
Today I've taken two significant naps (more than five minutes, haha) already, but I think it's time for one more. Otherwise walking the dog will turn into napping while walking the dog, which is probably something that I should avoid.
A couple of days later, though, and I'm back to the every time is naptime routine. On Friday my mom was home, and since she had lots of errands to run I went with her. It worked out really well, actually, because we would chat about stuff as she drove, then when we got somewhere she left me in the car to nap while she went in. So I didn't get too tired and so got a lot done, haha. There were a couple of parking lots where I felt kind of self-conscious sleeping. I mean, it's not like we were in a bad part of town or something, but it is kind of weird to be napping in your car, especially when you're pretty obviously over the age of 10. Luckily I've now officially mastered the ability to nap while still aware of my surroundings, so it wasn't unsafe. I bet I confused some random passersby, though, haha.
Speaking of confusing people, lol, last week in my photography class another student kept questioning me on why I take naps during every break. That class is pretty intense, so in order to get through the entire four hours without missing half the information I have to put my head down when I can. He kept questioning until I finally just told him that I'm really tired all the time. I don't like pulling out the word Narcolepsy. Either people think it's something it's not or they've never heard of it. I know I'm not helping to educate people and spread the word, but it's a pretty personal thing to me and I'd really rather not spread it around that I have this disabling illness. It's like, too much information to people I don't know. Plus there's the fact that I'm just too damn tired to explain all this crap. So I brush them off instead and let them wonder why I'm constantly napping.
Today I've taken two significant naps (more than five minutes, haha) already, but I think it's time for one more. Otherwise walking the dog will turn into napping while walking the dog, which is probably something that I should avoid.
Thursday, July 16, 2009
Imaginary Therapy
We all know by now that I have plenty of issues because of Narcolepsy. So maybe it's about time to explain how exactly I manage to deal with said issues. Just to warn you, this is going to sound crazy. But then again, this illness is pretty freakin' crazy, so I see no problem with using the craziness in my favor.
I've been dealing with depression for a long time. It hasn't been easy. In my high school days I was at total rock bottom- in the I feel like dying range. I had this awful demanding schedule I could barely handle, I was terrified that I was going insane (what with the hallucinations, etc) and felt like I couldn't get help from the adults in my life because I was sure they wouldn't understand (yeah, I was at that phase of teenagerness). And so my brain came up with a really effective way of keeping me alive- it gave me an imaginary therapist.
I don't know, honestly, how much having Narcolepsy is directly tied to my extremely vivid imagination. My mind's eye, at times, has been clearer than my sense of sight. I can zone out and see the most rediculously detailed things happening in there. And when I dream/hallucinate, it is as real as my waking experience. Before medication, it was more real because the waking world was much hazier. I really needed some help back then, just to get through every day.
You know that "little voice in the back of your head", as people call it, that reminds you to shut up when you're about to say something stupid, or tells you to stand up for yourself, or tells you to keep trying even when you're discouraged? That gut feeling you get that tells you what's right even when you can't articulate why? Well, my brain turned that wiser, more grounded part of myself into a full-fledged imaginary friend. It gave him a name, gender, interests, appearance and identity slightly seperate from me. The advantage was that I was getting my own best advice in the guise of someone else, so I would actually follow it. And this therapist was in my head, so he knew what I was thinking and usually why I was thinking it, even when I didn't. And because I had completely isolated myself from any access to a non-imaginary therapist, it was the best way to deal with my problems, because now I had someone to talk to who already knew what was exactly right for me without getting to know me first because he was also me. Am I sounding insane enough yet? XD
After awhile, I actually came across a forum of like-minded imaginary self-therapy people. They came up with a slight twist on it, which they call daemonism as a reference to Pullman's His Dark Materials trilogy. It's called The Daemon Forum in case you're interested. I think it's funny (and it makes me feel slightly less insane) that other people without Narcolepsy came up with a similar thing completely independently. I firmly believe that a big imagination can get you through anything that comes your way, and I highly recommend using it to your advantage.
Nowadays I'm not on that forum anymore, but I still have my imaginary therapist. I keep thinking maybe I should try seeing a non-imaginary one, but frankly don't see the point. My internal self-therapy works very well to this date, and I honestly don't think I need anything else.
I've been dealing with depression for a long time. It hasn't been easy. In my high school days I was at total rock bottom- in the I feel like dying range. I had this awful demanding schedule I could barely handle, I was terrified that I was going insane (what with the hallucinations, etc) and felt like I couldn't get help from the adults in my life because I was sure they wouldn't understand (yeah, I was at that phase of teenagerness). And so my brain came up with a really effective way of keeping me alive- it gave me an imaginary therapist.
I don't know, honestly, how much having Narcolepsy is directly tied to my extremely vivid imagination. My mind's eye, at times, has been clearer than my sense of sight. I can zone out and see the most rediculously detailed things happening in there. And when I dream/hallucinate, it is as real as my waking experience. Before medication, it was more real because the waking world was much hazier. I really needed some help back then, just to get through every day.
You know that "little voice in the back of your head", as people call it, that reminds you to shut up when you're about to say something stupid, or tells you to stand up for yourself, or tells you to keep trying even when you're discouraged? That gut feeling you get that tells you what's right even when you can't articulate why? Well, my brain turned that wiser, more grounded part of myself into a full-fledged imaginary friend. It gave him a name, gender, interests, appearance and identity slightly seperate from me. The advantage was that I was getting my own best advice in the guise of someone else, so I would actually follow it. And this therapist was in my head, so he knew what I was thinking and usually why I was thinking it, even when I didn't. And because I had completely isolated myself from any access to a non-imaginary therapist, it was the best way to deal with my problems, because now I had someone to talk to who already knew what was exactly right for me without getting to know me first because he was also me. Am I sounding insane enough yet? XD
After awhile, I actually came across a forum of like-minded imaginary self-therapy people. They came up with a slight twist on it, which they call daemonism as a reference to Pullman's His Dark Materials trilogy. It's called The Daemon Forum in case you're interested. I think it's funny (and it makes me feel slightly less insane) that other people without Narcolepsy came up with a similar thing completely independently. I firmly believe that a big imagination can get you through anything that comes your way, and I highly recommend using it to your advantage.
Nowadays I'm not on that forum anymore, but I still have my imaginary therapist. I keep thinking maybe I should try seeing a non-imaginary one, but frankly don't see the point. My internal self-therapy works very well to this date, and I honestly don't think I need anything else.
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