Since we moved back into the area, we've been in search of support groups that have trans members. Transsexualism isn't really something you can talk about to just anyone you meet, and even when you can people usually can't relate. First we tried driving an hour to the nearest city, but it was just too inconvenient. Then we realized there's actually a chapter of PFLAG (an LGBT and allies group) just twenty minutes away.
The first meeting we went to (they're monthly) wasn't terribly exciting, but that might have just been because I slept through it. The meetings take place at night, and I forgot to drink caffeine before we left, so by the time announcements were done and it was time to discuss things, I was out in my chair, dozing on my husband's shoulder. I was really annoyed at myself because the people seemed great and the atmosphere safe and friendly. So this time, I went armed with dark chocolate pieces to keep me awake there after drinking the strongest jasmine tea in the house.
It did sort of work, and it was a meeting that was specifically about trans issues with a speaker who had a transman son, so very relevant to us. I mostly didn't zone out, though I ended up pretty whacked out on excess caffeine and sugar. WHY do people meet at night of all times? Thank God the writer's group we go to is in the middle of the day on the weekend...
Well, at least I didn't miss anything this time. I even spoke up at one point because we were talking about the relationship between sexual orientation and gender identity (they are two very distinct and unrelated things, from my point of view) and people were half-convincing themselves that asexuals (who they didn't even know the word for) and androgynous people must be the same. I know multiple asexuals and most of them identify as female so I stood up for them, which everyone, especially this somewhat creepy counselor guy, seemed to be really interested in. It seems weird to me that a roomful of people who deviate from mainstream sexuality/gender wouldn't know that if they exist, surely other variations on the same theme do also. But, I know I have a really different perspective because I know a randomly and accidentally very diverse group of people.
But I thought the best part was as everyone was leaving, because we got to meet and talk to a bunch of people who were really cool and nice and supportive to each other. We met a transman who's in high school who immediately connected with J, J's mom got to talk with another mom for a long time, and I got randomly pounced on by people. The speaker randomly ran over (like, seriously ran) and hugged me for having married a transman because her son had always had a hard time finding a mate. I thought it was sweet, but mystifying, because I honestly can't figure out why I wouldn't be with a transman/J because we're so well-matched emotionally. Then I realized it probably had to do with the fact that I'm not "out" to these people... they don't know about my disability for the most part, and this woman didn't see me asleep last week. Therefore, they don't know that J actually does way more to take care of me than I have to do for him usually. I guess if he was the only "difficult" one lol, it would be harder for most people to stick around. Instead, I probably am harder to live with, through no fault of my own. I'm so grateful to have J that him being trans and all the difficulties that go with it just don't register most of the time.
We also ended up talking to an older transwoman for awhile until J's mom dragged us out because she could see me starting to sway on my feet. We didn't get home until almost 11, and I spent the next 24 hours recovering. I would say I wish the meetings were more frequent, but if they were I would be screwed. Someone should put a meeting during sane hours, just for me.
Showing posts with label tired. Show all posts
Showing posts with label tired. Show all posts
Thursday, November 10, 2011
Monday, November 7, 2011
Like a Narcoleptic in a Mattress Store
I may have found the perfect Narcoleptic career: mattress store model! You just fall asleep in the front window, and the people walking by think the mattress you're on will help them sleep. Warning: May Be Mistaken For Mannikin Except for Snoring. XD If only someone would PAY me to sleep...
Well, I was at a mattress store yesterday, and let me tell you, I have never had that much trouble staying vertical in a store before. Just sitting on the cushy new mattresses made me too comfortable to stay awake. My husband was highly amused that he had to continuously poke me every two minutes when it was time to test a different one. It didn't help that it was cloudy outside, approaching sunset, and that I was pretty tired. I'm hoping it's a good sign anyway, that when our new mattress comes I might sleep better on it than I do on our two old-ish twin mattresses on the floor. It may come tonight, which means I could immediately at it to my various sleep experiments of the moment.
I hope it works; I need all the help I can get this time of year...
Well, I was at a mattress store yesterday, and let me tell you, I have never had that much trouble staying vertical in a store before. Just sitting on the cushy new mattresses made me too comfortable to stay awake. My husband was highly amused that he had to continuously poke me every two minutes when it was time to test a different one. It didn't help that it was cloudy outside, approaching sunset, and that I was pretty tired. I'm hoping it's a good sign anyway, that when our new mattress comes I might sleep better on it than I do on our two old-ish twin mattresses on the floor. It may come tonight, which means I could immediately at it to my various sleep experiments of the moment.
I hope it works; I need all the help I can get this time of year...
Tuesday, May 3, 2011
Life Explosion
Well, life is settling back down again finally. We were able to borrow J's family's RV for this last month he's working at the high school here, and finally got moved into it and out of the hotel. The entire saga had us moving us and our pets no less than seven times in and out of hotels, our broken rental house (which our landlord kept trying to get fixed) and finally into the RV just a few days ago. Our stuff from the house is packed in boxes ready to be moved back to Wisconsin, where we're going to flee as soon as school ends and J is done teaching.
The RV, while crammed full of stuff and animals, at least doesn't smell like sewage and affect my sensitive immune system. It is also less area to keep clean than the house, though the one thing that was nice about the hotel was the fact that I didn't need to clean anything. This was a good thing because I've been completely flattened from exhaustion. Between the stress, parents poking us constantly and needing to keep everyone updated, the lack of fresh food (thank God for GF frozen dinners or I would have been even more screwed), long hours in the car and keeping everyone healthy and safe through the upheaval, it must have been the longest three weeks in existence. Various things forced me to do too much (like my fiance getting really sick for two days, during which I had to take care of him and even drive to Walmart once) and then it would take even longer than it normally would for me to recover.
In the middle of all of this, we had planned months earlier to go visit J's parents over Easter weekend seven hours away in Wisconsin. My parents were even flying up from Texas, as we wanted our parents to get to know each other better (they had only met once at graduation). The afternoon we were going to leave, we found out that the sewage situation was still not fixed when someone came to disinfect the drained basement and discovered new flooding. So we left, hoping to bring the RV back with us after the weekend was over.
Despite us being exhausted and feeling down on life, the visit with our parents went well and I was relieved at how relaxed my parents were. We had good long talks and caught up, my parents got to meet the horses and our big dog, who they had only seen pictures of before, and reunite with my dachshund, who they adore. We drove them around to show them the area and had dinner a couple of times. It was really good.
I don't know if I mentioned it yet, but my fiance got called in to talk to his boss, the principal, a couple of weeks ago in the middle of all this mess, to find out that he's not getting hired back next year. The principal said a few pretty critical things that had my fiance's confidence in his teaching pretty well shot through for awhile. The most aggravating part is that most of the man's argument is based on something one of the administrators messed up and blamed on J. What really got my fiance, though, was the word "unprofessional". He has to be female for work, but gets paralyzed by anxiety and depression if he dresses too female, so he has to go pretty androgynous and we suspect that's part of the principal's problem. The only thing is that J hasn't come out at work and doesn't plan to, and we have no proof of actual discrimination based on J not looking "female enough". It's just a vague suspicion that I have. At any rate, we just want to get out of that town. After the house problems, all the drama at the school and feeling like we can't go out without seeing lots of people who know J as female, we really just wanted to leave anyway.
For the summer we already had plans to return to J's parents' house to help his mom with taking care of the horses and to allow his parents to go on vacation. We've applied all over the country for English teacher positions, but we know we may not get anything for this next year. If we don't, it'll be a long stay with my in-laws again. I would love that except that the stairs there make my life extremely difficult. Honestly, we aren't sure what to do in J's career next. I hear a lot of transpeople have to switch careers in order to get free of their past life as the wrong gender, and in a career as conservative as public school teaching we aren't sure transitioning would be well-accepted. My man is very sensitive about how people think of him and I worry for him. We've been thinking about how to get his birth certificate changed, but that won't fix his reference letters (which refer to him as female), his social security number, or his college transcripts, which are all things schools look at when considering you. Also, the fact that we don't know what state we're going to be in doesn't help us come up with a clear plan of action as every state seems to have a different process for something as seemingly simple as changing your name. It's very bewildering and we aren't sure where to go from here.
Another thing that has us wondering is whether or not I'm going to have health insurance next year after my 26th birthday, when my dad's company stops being willing to cover me. We had thought, as we are getting married in July and assumed we would be in Iowa next year, that I could be on J's insurance which would at least help. But, if we move to any state where gay marriage isn't recognized or at least converted to a civil union (like Illinois), we aren't married anymore and I potentially lose the ability to have health insurance through my spouse. I've finally decided to try to get on disability because we need the income (my parents are still buying all of our food) as well as insurance, but that can take years and multiple rejections. Transitioning to a straight couple might turn out to be faster.
The good news is that (I think) I should have a pretty strong case. I've never been able to work even part-time, and my mom found a form that allows me to really go into detail about what is difficult for me. As soon as I finish it, I'm going to post it here, as I think it's useful for anyone researching narcolepsy, looking for something to relate to, or for anyone to fill out to use with their application. I started it wondering if I'm really "disabled", but by halfway through I realized that was silly. Hopefully, I can convince the government of this fact.
It's too gorgeous a day to not live in an RV. The first truly warm day we've had in awhile, with the sun shining, and despite everything I'm thankful to be here. I'm thankful to be anywhere.
The RV, while crammed full of stuff and animals, at least doesn't smell like sewage and affect my sensitive immune system. It is also less area to keep clean than the house, though the one thing that was nice about the hotel was the fact that I didn't need to clean anything. This was a good thing because I've been completely flattened from exhaustion. Between the stress, parents poking us constantly and needing to keep everyone updated, the lack of fresh food (thank God for GF frozen dinners or I would have been even more screwed), long hours in the car and keeping everyone healthy and safe through the upheaval, it must have been the longest three weeks in existence. Various things forced me to do too much (like my fiance getting really sick for two days, during which I had to take care of him and even drive to Walmart once) and then it would take even longer than it normally would for me to recover.
In the middle of all of this, we had planned months earlier to go visit J's parents over Easter weekend seven hours away in Wisconsin. My parents were even flying up from Texas, as we wanted our parents to get to know each other better (they had only met once at graduation). The afternoon we were going to leave, we found out that the sewage situation was still not fixed when someone came to disinfect the drained basement and discovered new flooding. So we left, hoping to bring the RV back with us after the weekend was over.
Despite us being exhausted and feeling down on life, the visit with our parents went well and I was relieved at how relaxed my parents were. We had good long talks and caught up, my parents got to meet the horses and our big dog, who they had only seen pictures of before, and reunite with my dachshund, who they adore. We drove them around to show them the area and had dinner a couple of times. It was really good.
I don't know if I mentioned it yet, but my fiance got called in to talk to his boss, the principal, a couple of weeks ago in the middle of all this mess, to find out that he's not getting hired back next year. The principal said a few pretty critical things that had my fiance's confidence in his teaching pretty well shot through for awhile. The most aggravating part is that most of the man's argument is based on something one of the administrators messed up and blamed on J. What really got my fiance, though, was the word "unprofessional". He has to be female for work, but gets paralyzed by anxiety and depression if he dresses too female, so he has to go pretty androgynous and we suspect that's part of the principal's problem. The only thing is that J hasn't come out at work and doesn't plan to, and we have no proof of actual discrimination based on J not looking "female enough". It's just a vague suspicion that I have. At any rate, we just want to get out of that town. After the house problems, all the drama at the school and feeling like we can't go out without seeing lots of people who know J as female, we really just wanted to leave anyway.
For the summer we already had plans to return to J's parents' house to help his mom with taking care of the horses and to allow his parents to go on vacation. We've applied all over the country for English teacher positions, but we know we may not get anything for this next year. If we don't, it'll be a long stay with my in-laws again. I would love that except that the stairs there make my life extremely difficult. Honestly, we aren't sure what to do in J's career next. I hear a lot of transpeople have to switch careers in order to get free of their past life as the wrong gender, and in a career as conservative as public school teaching we aren't sure transitioning would be well-accepted. My man is very sensitive about how people think of him and I worry for him. We've been thinking about how to get his birth certificate changed, but that won't fix his reference letters (which refer to him as female), his social security number, or his college transcripts, which are all things schools look at when considering you. Also, the fact that we don't know what state we're going to be in doesn't help us come up with a clear plan of action as every state seems to have a different process for something as seemingly simple as changing your name. It's very bewildering and we aren't sure where to go from here.
Another thing that has us wondering is whether or not I'm going to have health insurance next year after my 26th birthday, when my dad's company stops being willing to cover me. We had thought, as we are getting married in July and assumed we would be in Iowa next year, that I could be on J's insurance which would at least help. But, if we move to any state where gay marriage isn't recognized or at least converted to a civil union (like Illinois), we aren't married anymore and I potentially lose the ability to have health insurance through my spouse. I've finally decided to try to get on disability because we need the income (my parents are still buying all of our food) as well as insurance, but that can take years and multiple rejections. Transitioning to a straight couple might turn out to be faster.
The good news is that (I think) I should have a pretty strong case. I've never been able to work even part-time, and my mom found a form that allows me to really go into detail about what is difficult for me. As soon as I finish it, I'm going to post it here, as I think it's useful for anyone researching narcolepsy, looking for something to relate to, or for anyone to fill out to use with their application. I started it wondering if I'm really "disabled", but by halfway through I realized that was silly. Hopefully, I can convince the government of this fact.
It's too gorgeous a day to not live in an RV. The first truly warm day we've had in awhile, with the sun shining, and despite everything I'm thankful to be here. I'm thankful to be anywhere.
Friday, December 3, 2010
How Many Narcoleptics Does It Take To Do Interior Decorating?
Hi again! It's been ages, I know. But before I launch into The Life Summary Of Stuff, I feel like I should explain the title.
You'd think I learned from the whole lightbulb experience, but what can we say. My girlfriend (now fiancee) and I have a rented house now, and me being my artistic self, I always want it to look interestingly decorated. Her being her, she gets tired of having the furniture the same all the time and has tons of fun finding new ways to rearrange everything as often as possible, which then gets me rearranging everything on the walls to match.
Most of the time I manage just fine with tacks: I have unframed paintings on canvases that can just sit on them, and lots of dreamcatchers that tacks are perfect for. But every so often I do have something more complicated than that.
And so, I find myself precariously perched on a stool and an armchair, swaying dangerously, trying to hold up a framed drawing to the wall to see where I should put in the nail. Of course it's the kind of frame that has a little notch in the middle of the back that you are expected to (somehow) fit over a nail in exactly the right way so that the thing doesn't fall off on you. I figure out where I need to put in the nail, which I have ready in an attempt to only have to get up on the stool once (a somewhat dangerous operation in which I have to arrange feet and weight properly), so I go ahead and put it in. Now somewhat tired from holding up a hammer over my head, I sit that down and get the frame. I hold it over my head, which is difficult because it's heavy, and attempt to peer into the space between it and the wall in order to carefully slide the slot over it, which is pretty hard without depth perception- I can't tell where anything is unless it's right in line with the angle I'm looking at it. I try this about ten separate times, only to have the frame slide off each time. By now my arm hurts. Then it occurs to me that I probably nailed the nail in too far so it doesn't catch on the frame like it's supposed to, so I pull it out more and keep trying. Several minutes later I realize the nail itself is too small- it isn't going to stick out far enough. So I get down (now exhausted and sore) and go get a bigger nail.
This time it works as soon as I get the nail in, fortunately, because it's all I can do to hold up the hammer and the painting each one more time. Sometimes I can be pretty silly about wanting to finish something in one sitting...
So the answer is, one Narcoleptic, but you'd think she'd learn to take a nap in the middle.
Well, a lot has happened since I was here last. My girlfriend got hired for a part-time high school teaching post in middle of nowhere, Iowa. She drove out on a Thursday (it was seven hours away), got interviewed on Friday, was given the offer at the interview, which she accepted, then drove back that afternoon, knowing she was starting a week later. And then insanity ensued, eventually ending up with us here the day before she was to start inservice days, in a borrowed RV with our two dogs, living at a campground until we could locate someplace to rent.
Several months later, it's all settled down, just like the snow, which is currently blanketing everything and looking spectacular. Part of my reason for leaving this blog was that I ran out of stories for the time, but now I have a whole bunch lined up again. So I'm not going to spoil them all in one post. :D I'm doing fine, though, better in some ways then others. Overall life is good.
Stay tuned... XD
You'd think I learned from the whole lightbulb experience, but what can we say. My girlfriend (now fiancee) and I have a rented house now, and me being my artistic self, I always want it to look interestingly decorated. Her being her, she gets tired of having the furniture the same all the time and has tons of fun finding new ways to rearrange everything as often as possible, which then gets me rearranging everything on the walls to match.
Most of the time I manage just fine with tacks: I have unframed paintings on canvases that can just sit on them, and lots of dreamcatchers that tacks are perfect for. But every so often I do have something more complicated than that.
And so, I find myself precariously perched on a stool and an armchair, swaying dangerously, trying to hold up a framed drawing to the wall to see where I should put in the nail. Of course it's the kind of frame that has a little notch in the middle of the back that you are expected to (somehow) fit over a nail in exactly the right way so that the thing doesn't fall off on you. I figure out where I need to put in the nail, which I have ready in an attempt to only have to get up on the stool once (a somewhat dangerous operation in which I have to arrange feet and weight properly), so I go ahead and put it in. Now somewhat tired from holding up a hammer over my head, I sit that down and get the frame. I hold it over my head, which is difficult because it's heavy, and attempt to peer into the space between it and the wall in order to carefully slide the slot over it, which is pretty hard without depth perception- I can't tell where anything is unless it's right in line with the angle I'm looking at it. I try this about ten separate times, only to have the frame slide off each time. By now my arm hurts. Then it occurs to me that I probably nailed the nail in too far so it doesn't catch on the frame like it's supposed to, so I pull it out more and keep trying. Several minutes later I realize the nail itself is too small- it isn't going to stick out far enough. So I get down (now exhausted and sore) and go get a bigger nail.
This time it works as soon as I get the nail in, fortunately, because it's all I can do to hold up the hammer and the painting each one more time. Sometimes I can be pretty silly about wanting to finish something in one sitting...
So the answer is, one Narcoleptic, but you'd think she'd learn to take a nap in the middle.
Well, a lot has happened since I was here last. My girlfriend got hired for a part-time high school teaching post in middle of nowhere, Iowa. She drove out on a Thursday (it was seven hours away), got interviewed on Friday, was given the offer at the interview, which she accepted, then drove back that afternoon, knowing she was starting a week later. And then insanity ensued, eventually ending up with us here the day before she was to start inservice days, in a borrowed RV with our two dogs, living at a campground until we could locate someplace to rent.
Several months later, it's all settled down, just like the snow, which is currently blanketing everything and looking spectacular. Part of my reason for leaving this blog was that I ran out of stories for the time, but now I have a whole bunch lined up again. So I'm not going to spoil them all in one post. :D I'm doing fine, though, better in some ways then others. Overall life is good.
Stay tuned... XD
Tuesday, April 13, 2010
Totally Drained
What a crazy weekend. My girlfriend and I flew to my home state of Texas so she could go to a job fair for teachers there. I don't know if I've mentioned on here (since I've been neglecting my blog horribly) that we've decided to move there in July. We made that decision based on a number of things, including the fact that if we stayed up north for another winter I might freeze into a human popsicle, but also because she's ready for somewhere new and different to live. And my hometown has the advantage of lots of connections (I have a huge extended family), parental support, and lots of school districts for her to apply to. So far we've found one summer school and five full time job openings there and she's applied to all of them. We were a little worried about when we could start apartment hunting since we may not know if she's hired until the summer, until we looked things up and crunched some numbers and realized that actually she could support us by being a substitute teacher if she doesn't get any of the other jobs. We would still rather for sure be okay, however, so we went down for the job fair, figuring it might give her an edge on her first choice full time position.
We left on Friday and said goodbye to our cats, dogs and horses. My girlfriend's mom looked after them while we were gone. The trip there went fine and we got to catch up with my parents (who I hadn't seen since January). It was really, really good to see them. On Saturday my girlfriend went to the job fair, which was pretty intimidating but went well. Apparently it was packed with people. She left her resume with a bunch of schools, even though only one in that district was hiring for English, so if something opens up they might remember her.
Right after that we went to look at an apartment complex that we found online. It's affordable but really nice and has great outdoor spaces for the dogs- and us- to enjoy. We liked it a lot and found out they had the perfect apartment available. It's exactly the right size for us and the perfect layout- it even has a well-lit space for my art desk. Plus it's on the ground floor, which was important because stairs are exhausting for me. They only allow two pets, which at first made me unhappy. But my girlfriend made the point that our cats could stay with her mom until our third college roommate could take them. She's their favorite person on the planet, and loves cats more than anything. So I think it will work out. The more I think about it, the more I realize that being in charge of two cats and two dogs during the day has been pretty exhausting. As much as I love them, I think our friend could take better care of our cats, leaving me with more energy to enjoy being with the dogs. The apartment has been put on hold for us and we're filling out the application tonight. It's very exciting and takes a load of my mind that we have someplace to live lined up.
After that we went and visited one of my high school friends briefly, then went out to dinner with my parents. By the time we got back to their house we were both flattened. Even though I slept in during the job fair, I still way overdid it on Saturday. But it was worth it for how much we got to do and it was our only day there after all.
On Sunday I woke up with no energy whatsoever. My mom drove us to the airport in the morning. I spent the wait for our flight in a total daze, and my girlfriend wasn't any better off- she had eaten something at the restaurant that bothered her stomach and felt nasty the whole way home. Even after sitting on the plane and napping for most of the three hour flight, I was so tired I was having trouble putting one foot in front of the other when we got off the plane. Then, to make things even better, we got lost looking for the train. It took most of a Starbucks tea to wake me up enough just to walk. Eventually we found the train. I slept. We got on a bus to the parking lot where our car was. When we finally reached it we still had over another hour of driving to do to get to the middle of nowhere where we live. My girlfriend needed caffeine in order to drive because she was so tired. We made it back after a stop at the grocery store (since we had no food at home). The dogs were in the front yard and very happy to see us. We went to bed early.
Yesterday I didn't feel any better. I was so tired I couldn't do any cleaning- I just read a book all day, or slept. I didn't feel up to doing the stairs, but my girlfriend's mom helped me by putting the dogs outside. I fell asleep on the table several times. The cats didn't mind; they were very clingy because they were happy I was back. I stayed upstairs all day.
Today I'm definitely still recovering. I've been able to do some cleaning, though, and I haven't been falling asleep when I'm concentrating on staying awake. I can do the stairs again, just not quite as much as usual. I'm looking forward to living somewhere without stairs. Hopefully I'll be back to my normal amount of lack of energy tomorrow.
We left on Friday and said goodbye to our cats, dogs and horses. My girlfriend's mom looked after them while we were gone. The trip there went fine and we got to catch up with my parents (who I hadn't seen since January). It was really, really good to see them. On Saturday my girlfriend went to the job fair, which was pretty intimidating but went well. Apparently it was packed with people. She left her resume with a bunch of schools, even though only one in that district was hiring for English, so if something opens up they might remember her.
Right after that we went to look at an apartment complex that we found online. It's affordable but really nice and has great outdoor spaces for the dogs- and us- to enjoy. We liked it a lot and found out they had the perfect apartment available. It's exactly the right size for us and the perfect layout- it even has a well-lit space for my art desk. Plus it's on the ground floor, which was important because stairs are exhausting for me. They only allow two pets, which at first made me unhappy. But my girlfriend made the point that our cats could stay with her mom until our third college roommate could take them. She's their favorite person on the planet, and loves cats more than anything. So I think it will work out. The more I think about it, the more I realize that being in charge of two cats and two dogs during the day has been pretty exhausting. As much as I love them, I think our friend could take better care of our cats, leaving me with more energy to enjoy being with the dogs. The apartment has been put on hold for us and we're filling out the application tonight. It's very exciting and takes a load of my mind that we have someplace to live lined up.
After that we went and visited one of my high school friends briefly, then went out to dinner with my parents. By the time we got back to their house we were both flattened. Even though I slept in during the job fair, I still way overdid it on Saturday. But it was worth it for how much we got to do and it was our only day there after all.
On Sunday I woke up with no energy whatsoever. My mom drove us to the airport in the morning. I spent the wait for our flight in a total daze, and my girlfriend wasn't any better off- she had eaten something at the restaurant that bothered her stomach and felt nasty the whole way home. Even after sitting on the plane and napping for most of the three hour flight, I was so tired I was having trouble putting one foot in front of the other when we got off the plane. Then, to make things even better, we got lost looking for the train. It took most of a Starbucks tea to wake me up enough just to walk. Eventually we found the train. I slept. We got on a bus to the parking lot where our car was. When we finally reached it we still had over another hour of driving to do to get to the middle of nowhere where we live. My girlfriend needed caffeine in order to drive because she was so tired. We made it back after a stop at the grocery store (since we had no food at home). The dogs were in the front yard and very happy to see us. We went to bed early.
Yesterday I didn't feel any better. I was so tired I couldn't do any cleaning- I just read a book all day, or slept. I didn't feel up to doing the stairs, but my girlfriend's mom helped me by putting the dogs outside. I fell asleep on the table several times. The cats didn't mind; they were very clingy because they were happy I was back. I stayed upstairs all day.
Today I'm definitely still recovering. I've been able to do some cleaning, though, and I haven't been falling asleep when I'm concentrating on staying awake. I can do the stairs again, just not quite as much as usual. I'm looking forward to living somewhere without stairs. Hopefully I'll be back to my normal amount of lack of energy tomorrow.
Friday, February 5, 2010
Dog Wars
Life with four dogs in the house is definitely an adventure.
I know I've mentioned before that we have two dogs who live with us upstairs- a fluffy hotdog dog who moved in here with me (referred to in this post as Noodle) and a great big puppy who I've been referring to as Fang, who is generally big and goofy and was adopted by my girlfriend a couple of months ago. Noodle and Fang get along just fine, especially now that Noodle is over his fear issues and Fang is feeling more part of the family through our efforts of the past several weeks. If only there was only an upstairs to the house, but no, downstairs with my girlfriend's parents live no less than two more dogs: a massive but sweet-natured dog who weighs as much as I do (Hero) and a little, fuzzy teddy bear dog, his faithful Sidekick.
When Fang came to live in the house (before I did), my girlfriend and her mom tried (carefully) to introduce Fang to Hero. They met on leash a couple of times without too much drama, but then during the last attempt, ended up in a fight. No one was too physically damaged, fortunately. But ever since, Hero and Fang have not gotten along. No one wants another fight, so Hero and Sidekick have to be put in the back room anytime Fang needs to go outside (and therefore pass through the downstairs). It used to be just Hero who would be put away, until Sidekick tried to attack Fang seemingly unprovoked by anything other than the fact that he witnessed the earlier fight and wanted to support his Hero. So now both of them have to be lured into the back room with treats to be temporarily shut in. Any time Hero and Sidekick smell Fang being led through their downstairs territory, they let it be known what they think of the situation, as loudly as possible. As a matter of fact, Hero and Sidekick have been getting louder and louder in general since Fang came to live upstairs.
Another thing is that big dogs have a lot of energy, and gigantic puppies especially require a lot of walking. Fang came to my girlfriend (rescued from being tied out in a barn with only occasional food and water) completely untrained. She has a natural gift for getting animals to do what she wants, and has no trouble getting horses to listen to her, much less a naturally submissive dog. So he heels very well and is good on leash. The problem is that he's still a puppy, and he's big and strong and constantly wants to wrestle. Therefore, walking him is a physically demanding job. I haven't tried, but I'm pretty much positive it isn't something I should attempt. I learned my lesson during my very short-lived attempt to volunteer at my local shelter by walking the big dogs. I'm not very strong on a good day and run out of energy quickly. So this is why my girlfriend was the only one walking Fang since he got here a couple of months ago.
My girlfriend has carpal tunnel, which occasionally flares up at the least convenient times possible and renders her hands more or less useless. When she started her student teaching a few weeks ago, she was already having some problems which stress made ten times worse. It culminated in her staying home, completely drugged on pain medication, for two days last week. This was a bit difficult from the dog angle because poor Fang couldn't get any of his usual walks without my girlfriend's mom doing it for us. She doesn't have the same health problems I do, but hers also render her tired and weak a lot of the time, so it wasn't an arrangement that could last. We ended up pretty much convinced that we were going to have to find him a new home if walking him was too hard on my girlfriend's hands. We both got very sad about it because things were going so well with Noodle and Fang's relationship, plus Fang's relationship with me was getting stronger every day.
My girlfriend's mom got a good idea to try to come up with a way to walk the dogs without using hands. She got us a bungee cord, which didn't work, but we modified the idea. It took some fiddling, but we managed to rig a belt with two leashes so that my girlfriend can actually walk both Noodle and Fang at the same time without using her hands at all. She turns slightly to give corrections, and there is a dog on either side of her so that she can correct one without confusing the other. We were so relieved when we found a solution because both of us love Fang to death and didn't want to give him up.
So now the challenge we have is to try to smooth out the relationship between Fang and Hero, at least to the point of less barking and no more marking of territory (which Hero has done in the house since Fang moved in, more often at first but still occasionally now). Having watched a ton of Dog Whisperer episodes, I'm trying to get my girlfriend to walk Hero and Fang together because she's the natural leader of the household and I think that will help. She wants to work with Hero by himself first to remind him who's boss which is totally the first thing to do. I wish I could do it, being the one with time and functional hands, but I can't physically control a 60-pound dog on leash, much less one 60-pound dog and one that weighs just slightly less than I do, at the same time and when they may want to fight each other. So we're waiting until her hands recover a bit more. They are already a lot better this week- thanks to the belt contraption and me being her typist- so hopefully we can start working towards peace between the two packs of the house sometime soon.
I know I've mentioned before that we have two dogs who live with us upstairs- a fluffy hotdog dog who moved in here with me (referred to in this post as Noodle) and a great big puppy who I've been referring to as Fang, who is generally big and goofy and was adopted by my girlfriend a couple of months ago. Noodle and Fang get along just fine, especially now that Noodle is over his fear issues and Fang is feeling more part of the family through our efforts of the past several weeks. If only there was only an upstairs to the house, but no, downstairs with my girlfriend's parents live no less than two more dogs: a massive but sweet-natured dog who weighs as much as I do (Hero) and a little, fuzzy teddy bear dog, his faithful Sidekick.
When Fang came to live in the house (before I did), my girlfriend and her mom tried (carefully) to introduce Fang to Hero. They met on leash a couple of times without too much drama, but then during the last attempt, ended up in a fight. No one was too physically damaged, fortunately. But ever since, Hero and Fang have not gotten along. No one wants another fight, so Hero and Sidekick have to be put in the back room anytime Fang needs to go outside (and therefore pass through the downstairs). It used to be just Hero who would be put away, until Sidekick tried to attack Fang seemingly unprovoked by anything other than the fact that he witnessed the earlier fight and wanted to support his Hero. So now both of them have to be lured into the back room with treats to be temporarily shut in. Any time Hero and Sidekick smell Fang being led through their downstairs territory, they let it be known what they think of the situation, as loudly as possible. As a matter of fact, Hero and Sidekick have been getting louder and louder in general since Fang came to live upstairs.
Another thing is that big dogs have a lot of energy, and gigantic puppies especially require a lot of walking. Fang came to my girlfriend (rescued from being tied out in a barn with only occasional food and water) completely untrained. She has a natural gift for getting animals to do what she wants, and has no trouble getting horses to listen to her, much less a naturally submissive dog. So he heels very well and is good on leash. The problem is that he's still a puppy, and he's big and strong and constantly wants to wrestle. Therefore, walking him is a physically demanding job. I haven't tried, but I'm pretty much positive it isn't something I should attempt. I learned my lesson during my very short-lived attempt to volunteer at my local shelter by walking the big dogs. I'm not very strong on a good day and run out of energy quickly. So this is why my girlfriend was the only one walking Fang since he got here a couple of months ago.
My girlfriend has carpal tunnel, which occasionally flares up at the least convenient times possible and renders her hands more or less useless. When she started her student teaching a few weeks ago, she was already having some problems which stress made ten times worse. It culminated in her staying home, completely drugged on pain medication, for two days last week. This was a bit difficult from the dog angle because poor Fang couldn't get any of his usual walks without my girlfriend's mom doing it for us. She doesn't have the same health problems I do, but hers also render her tired and weak a lot of the time, so it wasn't an arrangement that could last. We ended up pretty much convinced that we were going to have to find him a new home if walking him was too hard on my girlfriend's hands. We both got very sad about it because things were going so well with Noodle and Fang's relationship, plus Fang's relationship with me was getting stronger every day.
My girlfriend's mom got a good idea to try to come up with a way to walk the dogs without using hands. She got us a bungee cord, which didn't work, but we modified the idea. It took some fiddling, but we managed to rig a belt with two leashes so that my girlfriend can actually walk both Noodle and Fang at the same time without using her hands at all. She turns slightly to give corrections, and there is a dog on either side of her so that she can correct one without confusing the other. We were so relieved when we found a solution because both of us love Fang to death and didn't want to give him up.
So now the challenge we have is to try to smooth out the relationship between Fang and Hero, at least to the point of less barking and no more marking of territory (which Hero has done in the house since Fang moved in, more often at first but still occasionally now). Having watched a ton of Dog Whisperer episodes, I'm trying to get my girlfriend to walk Hero and Fang together because she's the natural leader of the household and I think that will help. She wants to work with Hero by himself first to remind him who's boss which is totally the first thing to do. I wish I could do it, being the one with time and functional hands, but I can't physically control a 60-pound dog on leash, much less one 60-pound dog and one that weighs just slightly less than I do, at the same time and when they may want to fight each other. So we're waiting until her hands recover a bit more. They are already a lot better this week- thanks to the belt contraption and me being her typist- so hopefully we can start working towards peace between the two packs of the house sometime soon.
Tuesday, January 26, 2010
General Imploding
Well, today was... one of those days.
It started out with an especially sticky dream. It was pointless drama with various friends from the past, and it was basically frustrating and lonely and very vivid. I remember I could tell it was a dream by the end, but it took me a long time to escape. I tried thinking about waking up. I tried to open my eyes. I tried waving my arms around. I tried changing the setting of the dream because that usually wakes me up right away, but instead the setting just changed. I started to panic a little and wonder if it wasn't really a dream because I was having so much trouble getting out of it. Finally I decided if I fell off of something, I would probably wake up the second I would have hit the ground in my dream. So I climbed a bookcase and deliberately fell off. The stab of fear as I was falling did in fact jar me enough. I sat up, suddenly in the real world again. I had a nasty headache and the inside of my head felt like it was still glued to the dream. My eyelids kept trying to close and I was still half asleep. I got up feeling like I was tired enough to go straight back to bed.
Thinking didn't work particularly well. I quickly realized I couldn't retain information. Now, I'm really lucky. This didn't get me in too much trouble. I don't have kids to try to keep up with or a job to completely mess up when I'm way out of it. I just have pets.
The timing was pretty unfortunate for a bad day though. My girlfriend started her student teaching yesterday, so it was only my second day holding down the fort and the animals haven't quite figured it all out yet. Especially the big dog, who I'm going to start referring to as Fang because his canines stick out over his lower lip when he's upside down and in play mode, making him look hilarious. He's one, and definitely still a puppy, even if he is a 60+ pound puppy. Now, you might imagine I wasn't the one to fall madly in love with his rather large, fanged face lol, given the fact that I can barely carry my 15 pound dachshund down the stairs. Dogs are very much into physical contact and I know from my own little dog that it works way better to enforce the rules by gentle pushing. Of course, with him it's a breeze. His legs are super short and he's so small that despite my lack of physical strength I can still put him in a sit or lay down position if he won't do it on command. With Fang it's different because it takes literally my whole body to pull him an inch and I seriously can't put him in a sit.
So knowing this, I was a little intimidated by him at first. After all, the only dog I've ever actually trained is maybe a foot off the ground. Because of my unsure state of mind we were mutually distrustful for awhile, though we've been working on it and our relationship has improved a lot.
Well, today my girlfriend forgot to feed him before she left in the morning, but it took me awhile to figure this out. This was a difficult situation because he's only recently started taking food from me (and we have to feed him by hand because he gets overprotective otherwise as a result of his hungry past). I eventually got a message from her and tried to feed him, but he wouldn't eat and was generally depressed. I got pretty upset, because I'm extra sensitive and weepy when I'm feeling especially crappy. When she called me to check up I must have sounded pretty bad because she came home for lunch, took care of the fang-face and even heated lunch up for me. And I spent the rest of the day in bed watching movies while she was at work.
Days like today are frustrating because I literally can't accomplish anything. I'm so completely brain-dead that daily life decisions become difficult. All I can do is hope I sleep better tonight and thank my lucky stars that my life situation is so incredible and allows for a day of just resting.
It started out with an especially sticky dream. It was pointless drama with various friends from the past, and it was basically frustrating and lonely and very vivid. I remember I could tell it was a dream by the end, but it took me a long time to escape. I tried thinking about waking up. I tried to open my eyes. I tried waving my arms around. I tried changing the setting of the dream because that usually wakes me up right away, but instead the setting just changed. I started to panic a little and wonder if it wasn't really a dream because I was having so much trouble getting out of it. Finally I decided if I fell off of something, I would probably wake up the second I would have hit the ground in my dream. So I climbed a bookcase and deliberately fell off. The stab of fear as I was falling did in fact jar me enough. I sat up, suddenly in the real world again. I had a nasty headache and the inside of my head felt like it was still glued to the dream. My eyelids kept trying to close and I was still half asleep. I got up feeling like I was tired enough to go straight back to bed.
Thinking didn't work particularly well. I quickly realized I couldn't retain information. Now, I'm really lucky. This didn't get me in too much trouble. I don't have kids to try to keep up with or a job to completely mess up when I'm way out of it. I just have pets.
The timing was pretty unfortunate for a bad day though. My girlfriend started her student teaching yesterday, so it was only my second day holding down the fort and the animals haven't quite figured it all out yet. Especially the big dog, who I'm going to start referring to as Fang because his canines stick out over his lower lip when he's upside down and in play mode, making him look hilarious. He's one, and definitely still a puppy, even if he is a 60+ pound puppy. Now, you might imagine I wasn't the one to fall madly in love with his rather large, fanged face lol, given the fact that I can barely carry my 15 pound dachshund down the stairs. Dogs are very much into physical contact and I know from my own little dog that it works way better to enforce the rules by gentle pushing. Of course, with him it's a breeze. His legs are super short and he's so small that despite my lack of physical strength I can still put him in a sit or lay down position if he won't do it on command. With Fang it's different because it takes literally my whole body to pull him an inch and I seriously can't put him in a sit.
So knowing this, I was a little intimidated by him at first. After all, the only dog I've ever actually trained is maybe a foot off the ground. Because of my unsure state of mind we were mutually distrustful for awhile, though we've been working on it and our relationship has improved a lot.
Well, today my girlfriend forgot to feed him before she left in the morning, but it took me awhile to figure this out. This was a difficult situation because he's only recently started taking food from me (and we have to feed him by hand because he gets overprotective otherwise as a result of his hungry past). I eventually got a message from her and tried to feed him, but he wouldn't eat and was generally depressed. I got pretty upset, because I'm extra sensitive and weepy when I'm feeling especially crappy. When she called me to check up I must have sounded pretty bad because she came home for lunch, took care of the fang-face and even heated lunch up for me. And I spent the rest of the day in bed watching movies while she was at work.
Days like today are frustrating because I literally can't accomplish anything. I'm so completely brain-dead that daily life decisions become difficult. All I can do is hope I sleep better tonight and thank my lucky stars that my life situation is so incredible and allows for a day of just resting.
Friday, January 1, 2010
Hitting Pause
Well, I know I said I was going to keep taking Nuvigil, but I couldn't bring myself to take it yesterday morning. For one thing, I was so nauseated that I wasn't sure it would stay down. For another, I'd been having steadily worsening stomach cramps since I started it and therefore no appetite, which is not something I enjoy. But let's face it, it was the cookies that were the last straw. It was my birthday and my mom had made cookies for me (gluten and soy-free, of course, but still quite tasty), and I knew I would have no urge to eat even one if I took Nuvigil. And so I didn't, and sure enough I was getting hungry again by the middle of the day. I got to eat two cookies and so I think it was worth it.
That's not to say that I'm giving up on Nuvigil just yet. Someone left me a very helpful comment on my last entry, saying that at least two of the problems it was causing me went away for her after awhile. Which is very encouraging. I was definitely beginning to feel sleepy again even a couple of hours after not taking Nuvigil, and it's a strange thing: you don't realize how easy life is without the constant urge to sleep until it is gone, but then it's so easy to take for granted.
So I'm going to take my samples with me tomorrow and most likely try again soon. Just not on my birthday, or before having to get up early to travel.
That's not to say that I'm giving up on Nuvigil just yet. Someone left me a very helpful comment on my last entry, saying that at least two of the problems it was causing me went away for her after awhile. Which is very encouraging. I was definitely beginning to feel sleepy again even a couple of hours after not taking Nuvigil, and it's a strange thing: you don't realize how easy life is without the constant urge to sleep until it is gone, but then it's so easy to take for granted.
So I'm going to take my samples with me tomorrow and most likely try again soon. Just not on my birthday, or before having to get up early to travel.
Sunday, December 27, 2009
Who the Heck Knows
So tomorrow will be interesting. I'm going back to my neurologist after a couple of months of lack of communication. I'm not sure that he'll be happy to hear about how I'm doing at this point. Mainly I have even less energy than the last time I talked to him, but over the past month I've also been getting steadily more anxious and even a little depressed again. This makes me annoyed (and will probably also annoy my doctor) because I haven't changed anything. Okay, so I tried raising the Xyrem by the smallest possible increment briefly about a month ago when I was desperate for a couple of nights of sleep, but it didn't work- the side effects came back and I lowered it right back down to where it's been for probably the last six months. My Remeron is the same. I never experimented with Ritalin again (like he wanted me to) because it made me depressed that one day I tried it and I don't mess around with depression. My life has improved drastically since the last time I saw him now that I'm not stressed out trying to take four hour classes all the time, plus of course no longer being single and lonely helps. But I'm still more exhausted than ever, dreaming more than I had since I started Xyrem and on top of that have mood issues coming back for no apparent reason. Story of my life.
I'm not sure what he'll want my to do this time, if anything, because I've tried most things at this point. I suppose I could try harder at the stimulants. We'll see. It's just frustrating to be the bearer of bad news.
I'm not sure what he'll want my to do this time, if anything, because I've tried most things at this point. I suppose I could try harder at the stimulants. We'll see. It's just frustrating to be the bearer of bad news.
Wednesday, December 23, 2009
Art College Dorm Friends
More dreams. This time apparently more convincing. o.O
I was just moving in to this house to live with a group of other students from my art college, only they were all people I didn't know. We were exploring the small house, unpacking our things and joking around. Everyone seemed pretty nice. There were at least six of us, pretty much evenly divided between male and female though the numbers changed a little throughout the dream. A couple of people cooked dinner and made it gluten-free for me, which went fine. It was spaghetti and meatballs. We ate it while we watched this really dumb movie and people were making plans to go to another movie after dinner. It was getting late and I wasn't sure I should go, since I was exhausted and getting sleepy. I finished my dinner and looked around at everyone else, seated at two tables in our living room, which had no other furniture. I spotted one of the people who had cooked it. She looked a lot like one of my high school friends, even though she was supposedly a different person. She had seemed really nice so I thought I should get her attention (she was sitting at the other table) so maybe we could talk instead of going to the movie. As I watched, she started falling asleep sitting there, and I was interested to know if she had Narcolepsy too. I finally managed to signal her and so after dinner when everyone left, we ended up sitting in one of the bedrooms, talking. I kept trying to start my explanation of Narcolepsy because I really wanted to know if she had it, but she kept taking the conversation in some other direction every time I had an opportunity. Like, she asked me if I drank and I told her no, I can't because of my medication. But then she completely changed the subject to her stories and characters, which was really cool because we had that in common, so I gave up and figured I'd just end up explaining it all later. We were sitting on the floor, leaning over this sheet of notebook paper on which she had written the names of places in a world she had invented, and I was trying to pronounce them. I was happy because I had a new friend. And then I suddenly found myself in my bed, awake. I was really confused because I had been so positive I had actually been talking to this new friend. It took me a moment to figure out it was a dream.
I was just moving in to this house to live with a group of other students from my art college, only they were all people I didn't know. We were exploring the small house, unpacking our things and joking around. Everyone seemed pretty nice. There were at least six of us, pretty much evenly divided between male and female though the numbers changed a little throughout the dream. A couple of people cooked dinner and made it gluten-free for me, which went fine. It was spaghetti and meatballs. We ate it while we watched this really dumb movie and people were making plans to go to another movie after dinner. It was getting late and I wasn't sure I should go, since I was exhausted and getting sleepy. I finished my dinner and looked around at everyone else, seated at two tables in our living room, which had no other furniture. I spotted one of the people who had cooked it. She looked a lot like one of my high school friends, even though she was supposedly a different person. She had seemed really nice so I thought I should get her attention (she was sitting at the other table) so maybe we could talk instead of going to the movie. As I watched, she started falling asleep sitting there, and I was interested to know if she had Narcolepsy too. I finally managed to signal her and so after dinner when everyone left, we ended up sitting in one of the bedrooms, talking. I kept trying to start my explanation of Narcolepsy because I really wanted to know if she had it, but she kept taking the conversation in some other direction every time I had an opportunity. Like, she asked me if I drank and I told her no, I can't because of my medication. But then she completely changed the subject to her stories and characters, which was really cool because we had that in common, so I gave up and figured I'd just end up explaining it all later. We were sitting on the floor, leaning over this sheet of notebook paper on which she had written the names of places in a world she had invented, and I was trying to pronounce them. I was happy because I had a new friend. And then I suddenly found myself in my bed, awake. I was really confused because I had been so positive I had actually been talking to this new friend. It took me a moment to figure out it was a dream.
Thursday, December 10, 2009
Fort Hotel Dog Drama
Last night I was freaking out about travel and dog drama to my girlfriend, so how my dreams turned out really didn't surprise me.
I was on a trip with my two college roommates (one of them being the girlfriend I'm always gushing over) and our hotel was basically a bunch of forts made out of sheets and clothespins over chairs and tables in this giant mall food court, complete with escalators, food (gluteny poisonous food) and random shopping. It was seriously random. I had woken up late and we were supposed to go on some tour of somewhere, and I was rushing trying to get ready, but I was so exhausted I could hardly move and I couldn't find any clothes besides my pajamas. I asked my non-girlfriend roommate if she had seen my stuff anywhere, but she hadn't, and she was busy sewing a quilt so she couldn't help me. My girlfriend had run off somewhere and I had no idea when she would get back, and I was kind of worried she wouldn't get back in time for us to leave.
Then I was at this really frilly, fancy house in the guest room, and the person I was apparently staying with had two little white yorkies. They were quite well behaved even though they had a lot of energy, and I was trying to get my dog to relax around them. Of course he was completely traumatized and scared and he kept hiding behind the frilly white curtains or under the poofy pink bed. I ended up telling the yorkies to calm down and just sit next to him, and eventually he showed signs of getting over it.
Suddenly I was at this stadium, and the three dogs were on leash. I was trying to get us through all these crowds of people headed for their seats, and I was with this really big extended family with a ton of kids, so we had to move slowly. My dog was done freaking out, and now I was trying to get him to stop yanking the leash around while also keeping the yorkies in check, and trying to hold a conversation with various family members in Spanish. As we walked, we passed a bunch of small but deep pools of very clear water just randomly in holes in the sidewalk. My dog jumped in and started swimming, and I was all excited because he was having a really good time. Eventually we got near our seats and I asked the family to hold the dogs for me while I ran into the bathroom, because I knew I would need to go before whatever we were going to watch started. There was a lot of confusion around the dogs because I didn't remember that much Spanish and we were still sorting it out when I woke up.
I was on a trip with my two college roommates (one of them being the girlfriend I'm always gushing over) and our hotel was basically a bunch of forts made out of sheets and clothespins over chairs and tables in this giant mall food court, complete with escalators, food (gluteny poisonous food) and random shopping. It was seriously random. I had woken up late and we were supposed to go on some tour of somewhere, and I was rushing trying to get ready, but I was so exhausted I could hardly move and I couldn't find any clothes besides my pajamas. I asked my non-girlfriend roommate if she had seen my stuff anywhere, but she hadn't, and she was busy sewing a quilt so she couldn't help me. My girlfriend had run off somewhere and I had no idea when she would get back, and I was kind of worried she wouldn't get back in time for us to leave.
Then I was at this really frilly, fancy house in the guest room, and the person I was apparently staying with had two little white yorkies. They were quite well behaved even though they had a lot of energy, and I was trying to get my dog to relax around them. Of course he was completely traumatized and scared and he kept hiding behind the frilly white curtains or under the poofy pink bed. I ended up telling the yorkies to calm down and just sit next to him, and eventually he showed signs of getting over it.
Suddenly I was at this stadium, and the three dogs were on leash. I was trying to get us through all these crowds of people headed for their seats, and I was with this really big extended family with a ton of kids, so we had to move slowly. My dog was done freaking out, and now I was trying to get him to stop yanking the leash around while also keeping the yorkies in check, and trying to hold a conversation with various family members in Spanish. As we walked, we passed a bunch of small but deep pools of very clear water just randomly in holes in the sidewalk. My dog jumped in and started swimming, and I was all excited because he was having a really good time. Eventually we got near our seats and I asked the family to hold the dogs for me while I ran into the bathroom, because I knew I would need to go before whatever we were going to watch started. There was a lot of confusion around the dogs because I didn't remember that much Spanish and we were still sorting it out when I woke up.
Saturday, November 21, 2009
Good Decisions
Well, my latest attempt to raise my Xyrem dose has (not surprisingly) backfired. I only raised it one little increment on one of the three doses, and it did help me sleep for about a week. But then I got my usual side effects back- anxiety and lack of appetite- and had to lower it again. It's made me uptight and tense, so it was a relief to wake up this morning feeling a little bit back to normal. I'm pretty cheerful today.
I'm so glad that I went ahead and dropped two of my classes. I've had a chance to rest and after a couple of weeks of falling behind I'm actually ahead in my one remaining class. I'm also no longer finding it hard to keep things clean, I have the energy to make myself food again and I haven't missed a single walk with my dog. Since regaining the energy to take care of my daily life was the point of dropping classes, I think it's been worth it.
At the same time, as I get ready to leave the school, I've been a little sad about it. I've had a good time there and learned a lot of very useful information. Part of me does want to finish this degree, but I know it doesn't make sense practically. Last March, I was taking four intense classes- two of them with the hardest drawing instructor in the school- and easily taking the stairs up to the fifth floor almost every day. Yesterday I went to school to sort through some photos and print some things out. I was there for maybe two hours- more like one and a half- and I needed a nap by the end. One of the elevators was broken, so it was a long wait for the other one. I took the stairs up to the fifth floor for the first time in months. It took all that I had- I leaned heavily on the handrail and went very slowly. It really impressed on me how much worse I've gotten, and I have no way of knowing when I'm going to get feeling better. That's why I need to leave the school, because I just don't have the energy anymore.
I wish I could say for sure that I'll be coming back. But the reality is that it could be years before I'm really able to, and by then life might have taken me somewhere else. Or it could be just one quarter that I'm gone, who knows. We'll just have to see.
I'm so glad that I went ahead and dropped two of my classes. I've had a chance to rest and after a couple of weeks of falling behind I'm actually ahead in my one remaining class. I'm also no longer finding it hard to keep things clean, I have the energy to make myself food again and I haven't missed a single walk with my dog. Since regaining the energy to take care of my daily life was the point of dropping classes, I think it's been worth it.
At the same time, as I get ready to leave the school, I've been a little sad about it. I've had a good time there and learned a lot of very useful information. Part of me does want to finish this degree, but I know it doesn't make sense practically. Last March, I was taking four intense classes- two of them with the hardest drawing instructor in the school- and easily taking the stairs up to the fifth floor almost every day. Yesterday I went to school to sort through some photos and print some things out. I was there for maybe two hours- more like one and a half- and I needed a nap by the end. One of the elevators was broken, so it was a long wait for the other one. I took the stairs up to the fifth floor for the first time in months. It took all that I had- I leaned heavily on the handrail and went very slowly. It really impressed on me how much worse I've gotten, and I have no way of knowing when I'm going to get feeling better. That's why I need to leave the school, because I just don't have the energy anymore.
I wish I could say for sure that I'll be coming back. But the reality is that it could be years before I'm really able to, and by then life might have taken me somewhere else. Or it could be just one quarter that I'm gone, who knows. We'll just have to see.
Friday, November 13, 2009
Dropping
Today I went up to my school and dropped two of my three classes. I was stressed out all morning, dreading it. It was pretty quick and easy, but I still feel really guilty about it for some reason.
It's not that I think I'm not doing the right thing. I already feel a lot less stressed out knowing that I just have one class to keep up with now. It really was too much and there's no doubt about that. It's just hard for me to let go sometimes, especially when I'm doing well in a class despite everything. Plus I'm a little worried I'm going to get crap for it or something, which is silly because I do have the best reasons ever.
I still have to sort out not coming back next quarter, but fortunately it turns out I can do it any time between now and the end of the quarter. That gives me a little bit more time to recover before I tackle the next hurdle.
I have been talking to my parents about it, and they reacted more or less exactly how I predicted, with my mom freaking out and resistant at first, but then getting it after a lot of explanation, and my dad taking it in stride. My parental drama now has to do with how worried they are about the state of my health.
It's not surprising. I mean, they really care about me and sincerely want me to feel better, and I do appreciate that- a lot. But it can be stifling- they want to direct everything, and get more involved than I really want them to be. Part of it probably comes from living with them still. Right now I'm just trying to get myself a little bit of space, and do some recovering before I go back to my neurologist. My parents wanted me to make an appointment as soon as possible, but I think that's rushing things. I want to see what effect, if any, not having classes to get to and get through and stress out about has on my health first. I really think I'll get feeling better in the next couple of weeks without doctor intervention. Also, I need my slightly raised Xyrem dose to settle out so I can tell if it helps or my side effects come back. Basically they want to rush over there and start interrogating my doctor about how we're going to fix me, and I just want to coast along and see how I feel. I think my parents still have this idea of a healthy me that may never actually happen. I have Narcolepsy, and I know that I may always have this interfering with my life. I'm okay with that at this point- I'm beginning to accept the idea of making the most of the situation instead of trying to live as if I don't have a chronic condition. I think my parents aren't quite there yet.
I'm really really grateful for their support and how much they care. But I'm also glad that my girlfriend agrees with me and supports my view of the situation. I might have mentioned that I have the best person in the universe as my girlfriend, so it's thoroughly unfair to compare my parents to her. It does mean that in the future life will most likely involve less freaking out, at least about this stuff, which is something I'm very happy about.
It's not that I think I'm not doing the right thing. I already feel a lot less stressed out knowing that I just have one class to keep up with now. It really was too much and there's no doubt about that. It's just hard for me to let go sometimes, especially when I'm doing well in a class despite everything. Plus I'm a little worried I'm going to get crap for it or something, which is silly because I do have the best reasons ever.
I still have to sort out not coming back next quarter, but fortunately it turns out I can do it any time between now and the end of the quarter. That gives me a little bit more time to recover before I tackle the next hurdle.
I have been talking to my parents about it, and they reacted more or less exactly how I predicted, with my mom freaking out and resistant at first, but then getting it after a lot of explanation, and my dad taking it in stride. My parental drama now has to do with how worried they are about the state of my health.
It's not surprising. I mean, they really care about me and sincerely want me to feel better, and I do appreciate that- a lot. But it can be stifling- they want to direct everything, and get more involved than I really want them to be. Part of it probably comes from living with them still. Right now I'm just trying to get myself a little bit of space, and do some recovering before I go back to my neurologist. My parents wanted me to make an appointment as soon as possible, but I think that's rushing things. I want to see what effect, if any, not having classes to get to and get through and stress out about has on my health first. I really think I'll get feeling better in the next couple of weeks without doctor intervention. Also, I need my slightly raised Xyrem dose to settle out so I can tell if it helps or my side effects come back. Basically they want to rush over there and start interrogating my doctor about how we're going to fix me, and I just want to coast along and see how I feel. I think my parents still have this idea of a healthy me that may never actually happen. I have Narcolepsy, and I know that I may always have this interfering with my life. I'm okay with that at this point- I'm beginning to accept the idea of making the most of the situation instead of trying to live as if I don't have a chronic condition. I think my parents aren't quite there yet.
I'm really really grateful for their support and how much they care. But I'm also glad that my girlfriend agrees with me and supports my view of the situation. I might have mentioned that I have the best person in the universe as my girlfriend, so it's thoroughly unfair to compare my parents to her. It does mean that in the future life will most likely involve less freaking out, at least about this stuff, which is something I'm very happy about.
Tuesday, November 10, 2009
Going Domestic
It's finally time to reveal my latest life plan. To be honest, it surprises me a bit. But then again, life is surprising and it likes to change your path in ways you never expected. I suppose that's something I've been learning through my last eight attempts at planning the future, lol.
As you know if you've been reading about my life for some reason, my Narcolepsy has been really kicking my ass lately. For over a year I've been working on an Animation degree at the local art institute, but as my energy level has been plummeting the last couple of months I've been rethinking things. I dropped from four classes to three two quarters ago out of necessity and now I'm struggling to stay afloat with just the three (and they're easier). When I started this degree (my second bachelor's) a year ago, my intention was to use it to get a full time studio job because the field of animation is just such a good fit for me personality-wise. If I were going to work full time, that would be the job for me. And I've really enjoyed my classes, don't get me wrong. It's been a blast and I've learned a ton about a lot of art-related fields, as well as some useful practical skills. But things have changed. I've gone downhill far enough to really put full time work out of reach. For awhile I just assumed I would switch to trying to work part time eventually, but right now that, too, has become unrealistic. So there goes the main reason I was pursuing another degree.
Meanwhile, I'm starting to realize that taking these classes has begun to interfere with taking care of myself. While I'm still enjoying them, I've been really stressed out because I'm barely keeping up with the work. Having a class on a day tends to kill it- by the time I drive over there, try to concentrate for four hours and drive home, that's my entire day's worth of energy gone. I'm finding it difficult to keep things clean around the house or cook something other than a frozen dinner on those days. Most of my class days- three days a week- my dog doesn't get his second walk. And basically I'm tired of skimping on the important dog and health aspects of my life in order to finish an extra degree.
But there is the really good addition to my life right now, namely the fact that I'm dating my best friend in the world, who actually gets all of this stuff. We're planning to move in together over the summer, and her take on the situation was that as she's going to be busy and full-time employed with a steady job that's likely to always be in demand, she can support me financially. I could take care of the animals and the apartment and help her to stay organized (which she desperately needs help with), and run the errands and work on my art, and that will be my full-time job. I think this idea is brilliant because for once I feel like it's something I could actually physically manage, even with Narcolepsy breathing down my neck. It also aligns more closely with my own personal values than any hypothetical careers I've tried to come up with in the past. Taking care of her and our environment and pets sounds wonderful to me. And you know, if I start feeling better I can always add more. If my art becomes something good I could pursue that, maybe even make some money on the side, but I wouldn't be in the predicament of needing to produce it fast enough to support myself. Also, I can be on her health insurance, which solves that looming problem.
I'm anticipating some resistance from the parents on this latest occupation idea, however. I tried to feel my mom out on the idea of not finishing my Animation degree, and she has the opinion that if I'm not in school or working this means I'm going to be bored or unhappy. Now, this makes sense, because that's how she would feel without school or a job, which is why she's worked right through periods of her own bad health. But I think I'll be fine. I'm pretty zen. I can slow down and actually be happier that way.
I think my dad will be resistant just because he really likes making money, has a ton of energy, and has trouble seeing things from other points of view. I had a really good conversation with him last week about how my health is right now, so I'm hopeful he'll understand that aspect of it. But he's always had this image of successful career-woman me in his head that I've been bumping up against my entire life.
What I think is interesting about this situation is that if I had a serious boyfriend instead of a serious girlfriend no one would so much as blink- this is Texas after all. And if it was fifty years ago this novel, out-there idea of being my spouse's housewife would have been a given. But it is here and it is now, and this will be interesting.
As you know if you've been reading about my life for some reason, my Narcolepsy has been really kicking my ass lately. For over a year I've been working on an Animation degree at the local art institute, but as my energy level has been plummeting the last couple of months I've been rethinking things. I dropped from four classes to three two quarters ago out of necessity and now I'm struggling to stay afloat with just the three (and they're easier). When I started this degree (my second bachelor's) a year ago, my intention was to use it to get a full time studio job because the field of animation is just such a good fit for me personality-wise. If I were going to work full time, that would be the job for me. And I've really enjoyed my classes, don't get me wrong. It's been a blast and I've learned a ton about a lot of art-related fields, as well as some useful practical skills. But things have changed. I've gone downhill far enough to really put full time work out of reach. For awhile I just assumed I would switch to trying to work part time eventually, but right now that, too, has become unrealistic. So there goes the main reason I was pursuing another degree.
Meanwhile, I'm starting to realize that taking these classes has begun to interfere with taking care of myself. While I'm still enjoying them, I've been really stressed out because I'm barely keeping up with the work. Having a class on a day tends to kill it- by the time I drive over there, try to concentrate for four hours and drive home, that's my entire day's worth of energy gone. I'm finding it difficult to keep things clean around the house or cook something other than a frozen dinner on those days. Most of my class days- three days a week- my dog doesn't get his second walk. And basically I'm tired of skimping on the important dog and health aspects of my life in order to finish an extra degree.
But there is the really good addition to my life right now, namely the fact that I'm dating my best friend in the world, who actually gets all of this stuff. We're planning to move in together over the summer, and her take on the situation was that as she's going to be busy and full-time employed with a steady job that's likely to always be in demand, she can support me financially. I could take care of the animals and the apartment and help her to stay organized (which she desperately needs help with), and run the errands and work on my art, and that will be my full-time job. I think this idea is brilliant because for once I feel like it's something I could actually physically manage, even with Narcolepsy breathing down my neck. It also aligns more closely with my own personal values than any hypothetical careers I've tried to come up with in the past. Taking care of her and our environment and pets sounds wonderful to me. And you know, if I start feeling better I can always add more. If my art becomes something good I could pursue that, maybe even make some money on the side, but I wouldn't be in the predicament of needing to produce it fast enough to support myself. Also, I can be on her health insurance, which solves that looming problem.
I'm anticipating some resistance from the parents on this latest occupation idea, however. I tried to feel my mom out on the idea of not finishing my Animation degree, and she has the opinion that if I'm not in school or working this means I'm going to be bored or unhappy. Now, this makes sense, because that's how she would feel without school or a job, which is why she's worked right through periods of her own bad health. But I think I'll be fine. I'm pretty zen. I can slow down and actually be happier that way.
I think my dad will be resistant just because he really likes making money, has a ton of energy, and has trouble seeing things from other points of view. I had a really good conversation with him last week about how my health is right now, so I'm hopeful he'll understand that aspect of it. But he's always had this image of successful career-woman me in his head that I've been bumping up against my entire life.
What I think is interesting about this situation is that if I had a serious boyfriend instead of a serious girlfriend no one would so much as blink- this is Texas after all. And if it was fifty years ago this novel, out-there idea of being my spouse's housewife would have been a given. But it is here and it is now, and this will be interesting.
Friday, November 6, 2009
A Good Cry
Sometimes you just need a good cry.
Every time I've tried to talk to anyone about my health lately I've ended up in tears before I can even really say anything. I'm in a pretty bad place with Narcolepsy right now. I've been going downhill for months and my neurologist is basically out of ideas, which makes me feel pretty helpless. I'm having more and more trouble doing the work for my increasingly fewer classes and I'm sleeping worse as the nights go on. I feel like I'm fighting an uphill battle and losing ground every day. To say I'm scared would be an understatement.
At the same time my life is changing for the better. I've been able to make plans to move out of my parents house (which I was seriously worried I would still be living in at the age of 35) to start a life with my girlfriend (who we have already established is the best person ever). It's such a wonderful emotional thing, and my health is such a terrible emotional thing that between the two I've felt like I've been on an emotional rollercoaster all day.
I talked to my mom this morning and my dad when he got home from work. Both parents are ecstatic about the plans and worried about the health. I had a heart to heart with my dad on the way home from dinner about how bad my Narcolepsy is getting and how helpless I feel in the face of it. When we got home he gave me the tightest hug in a long time and told me he loves me. I was already crying, but I lost it even more because I'm so damned lucky to have the parents that I have. I headed straight for the shower and cried my eyes out for awhile. I actually let all my feelings about my health come out for once; most of the time I shove the panic down and try to ignore it, to pretend like I can handle this.
My inner therapist is telling me that I need to learn to accept the lack of control. I think that's one of the major things I can learn from this illness... that I need to let things happen sometimes instead of getting caught up in frustration and disappointment when I can't change how I feel. But I'm so not there yet. At least the people around me are the best people in the world, and because of that I know everything will turn out okay.
Every time I've tried to talk to anyone about my health lately I've ended up in tears before I can even really say anything. I'm in a pretty bad place with Narcolepsy right now. I've been going downhill for months and my neurologist is basically out of ideas, which makes me feel pretty helpless. I'm having more and more trouble doing the work for my increasingly fewer classes and I'm sleeping worse as the nights go on. I feel like I'm fighting an uphill battle and losing ground every day. To say I'm scared would be an understatement.
At the same time my life is changing for the better. I've been able to make plans to move out of my parents house (which I was seriously worried I would still be living in at the age of 35) to start a life with my girlfriend (who we have already established is the best person ever). It's such a wonderful emotional thing, and my health is such a terrible emotional thing that between the two I've felt like I've been on an emotional rollercoaster all day.
I talked to my mom this morning and my dad when he got home from work. Both parents are ecstatic about the plans and worried about the health. I had a heart to heart with my dad on the way home from dinner about how bad my Narcolepsy is getting and how helpless I feel in the face of it. When we got home he gave me the tightest hug in a long time and told me he loves me. I was already crying, but I lost it even more because I'm so damned lucky to have the parents that I have. I headed straight for the shower and cried my eyes out for awhile. I actually let all my feelings about my health come out for once; most of the time I shove the panic down and try to ignore it, to pretend like I can handle this.
My inner therapist is telling me that I need to learn to accept the lack of control. I think that's one of the major things I can learn from this illness... that I need to let things happen sometimes instead of getting caught up in frustration and disappointment when I can't change how I feel. But I'm so not there yet. At least the people around me are the best people in the world, and because of that I know everything will turn out okay.
I Already Forgot My Clever Title For This Entry
I've been having a pretty trippy week. I'm still doing a lot more intense dreaming than usual and it's taking its toll on my energy level.
Yesterday I woke up from a really bloody and gorey dream in which I was this girl in a family that was heavily involved in organized crime. I didn't look anything like me; I had very dark hair and so did the rest of my dream family. A lot of them were these big burly thugs like you see in movies. I forget what the latest crime plot was, but most of the dream took place at this party that was outside in a rural, forested place. It was daylight but overcast and a little spooky. At one point I discovered that there was an undercover FBI agent at the party and decided (for reasons I don't remember) to help him out. I was terrified of my brothers finding out what I was doing. Someone figured out who the agent was and I was helping him escape; we were being chased and I had to lead him through the back of our sprawling, mansion-like house. There was lots of gunfire and blood and the whole thing was pretty disturbing, but he got away and I hid in a bathroom so no one would know I had been involved.
I actually had some energy to start with yesterday, which was good because photographing stuff takes it out of me. I got my first photo idea all set up when my memory card claimed to be out of space, which made no sense because I was careful to delete everything off of it last time I was downloading things. I ended up having to go buy another one.
Leaving the house always lays me out, but there's an office supply place really close to my neighborhood so I figured if I just went there they would have it. Wrong. I drove over there to find that they didn't have anything like what I needed and by the time I got back (all of five minutes later) I was so exhausted I had to lay down.
I figured a nap and some lunch would give me the energy I needed to go to the slightly further away office supply place. Well, by the time I got back from there (and a quick grocery stop because I had discovered when I tried to make lunch that I was almost completely out of food) it was 2 PM and I was pretty much dead in the water.
I was determined to get some homework done, so I took a couple of shots in my room. Then I dragged myself upstairs and spent the rest of the day on the couch or in bed. That's the earliest I've crashed in awhile.
And today I don't feel much better. I was reading Harry Potter again last night and dreamed that I was Harry and had to hide from Voldemort, who could suddenly read my mind, so if I made the mistake of thinking about where I was he would appear and I would have to escape over and over. I ended up some really weird places, like a carnival with giant brightly colored rides, a small log cabin in the woods, a big theater in a high school, etc etc, with various other characters mixed in. At least it wasn't particularly disturbing.
Here's to hoping that today isn't a repeat of yesterday, even though I'm already dragging...
Yesterday I woke up from a really bloody and gorey dream in which I was this girl in a family that was heavily involved in organized crime. I didn't look anything like me; I had very dark hair and so did the rest of my dream family. A lot of them were these big burly thugs like you see in movies. I forget what the latest crime plot was, but most of the dream took place at this party that was outside in a rural, forested place. It was daylight but overcast and a little spooky. At one point I discovered that there was an undercover FBI agent at the party and decided (for reasons I don't remember) to help him out. I was terrified of my brothers finding out what I was doing. Someone figured out who the agent was and I was helping him escape; we were being chased and I had to lead him through the back of our sprawling, mansion-like house. There was lots of gunfire and blood and the whole thing was pretty disturbing, but he got away and I hid in a bathroom so no one would know I had been involved.
I actually had some energy to start with yesterday, which was good because photographing stuff takes it out of me. I got my first photo idea all set up when my memory card claimed to be out of space, which made no sense because I was careful to delete everything off of it last time I was downloading things. I ended up having to go buy another one.
Leaving the house always lays me out, but there's an office supply place really close to my neighborhood so I figured if I just went there they would have it. Wrong. I drove over there to find that they didn't have anything like what I needed and by the time I got back (all of five minutes later) I was so exhausted I had to lay down.
I figured a nap and some lunch would give me the energy I needed to go to the slightly further away office supply place. Well, by the time I got back from there (and a quick grocery stop because I had discovered when I tried to make lunch that I was almost completely out of food) it was 2 PM and I was pretty much dead in the water.
I was determined to get some homework done, so I took a couple of shots in my room. Then I dragged myself upstairs and spent the rest of the day on the couch or in bed. That's the earliest I've crashed in awhile.
And today I don't feel much better. I was reading Harry Potter again last night and dreamed that I was Harry and had to hide from Voldemort, who could suddenly read my mind, so if I made the mistake of thinking about where I was he would appear and I would have to escape over and over. I ended up some really weird places, like a carnival with giant brightly colored rides, a small log cabin in the woods, a big theater in a high school, etc etc, with various other characters mixed in. At least it wasn't particularly disturbing.
Here's to hoping that today isn't a repeat of yesterday, even though I'm already dragging...
Monday, November 2, 2009
Getting Exercise
Today I had a day pretty much off from class things, having been especially responsible about getting things done last week (or it might have been the caffeine, haha). So when I got up this morning I decided to catch up on some cleaning. When I'm as focused on getting through college (again) as I've had to be lately with my health going downhill, things fall by the wayside around my part of the house. I'm only responsible for my small bedroom and the downstairs bathroom but it still has to get pretty bad before I do anything about it. Now, we are talking about my grew-up-with-a-total-neatfreak version of bad, so I'm sure there are many worse bathrooms out there. But it was seriously starting to bother me. Besides that, dust has been building up in my room again so I figured I would tackle that afterwards.
I figured I'd just do my cleaning in the morning, so after I ate breakfast I got out all the bathroom cleaning stuff to drag back downstairs. Then I got to work. It took me awhile because I had to figure it out- it had been awhile since I'd done more than the vanity and with my terrible memory I had forgotten exactly how to clean everything. By the time I finished the bathroom was gleaming and I was overdue for a nap. I decided to take the dog outside first.
I got out there to find myself facing another accidental nap on the porch and just went straight back inside. I took an hour-long nap and was still tired after that. I definitely abandoned the idea of dusting.
I tend to forget how much cleaning takes it out of me. If you think about it though, if you're doing a good job it is pretty serious exercise, though it isn't valued as such. It does involve a whole lot of moving around, getting down on your knees and using muscles you aren't really used to using. I can remember countless times pre-diagnosis when I would try to do just a little bit of cleaning and end up completely flattened. I used to be very confused as to why it was so exhausting. Sweeping especially kills me- all that standing up nonsense. How dare I think about walking around like that, moving my arms, haha. It's too much physical work, so I leave it to my dad. At least these days I usually remember to save the cleaning I do have to do for days when I don't have anything else.
I figured I'd just do my cleaning in the morning, so after I ate breakfast I got out all the bathroom cleaning stuff to drag back downstairs. Then I got to work. It took me awhile because I had to figure it out- it had been awhile since I'd done more than the vanity and with my terrible memory I had forgotten exactly how to clean everything. By the time I finished the bathroom was gleaming and I was overdue for a nap. I decided to take the dog outside first.
I got out there to find myself facing another accidental nap on the porch and just went straight back inside. I took an hour-long nap and was still tired after that. I definitely abandoned the idea of dusting.
I tend to forget how much cleaning takes it out of me. If you think about it though, if you're doing a good job it is pretty serious exercise, though it isn't valued as such. It does involve a whole lot of moving around, getting down on your knees and using muscles you aren't really used to using. I can remember countless times pre-diagnosis when I would try to do just a little bit of cleaning and end up completely flattened. I used to be very confused as to why it was so exhausting. Sweeping especially kills me- all that standing up nonsense. How dare I think about walking around like that, moving my arms, haha. It's too much physical work, so I leave it to my dad. At least these days I usually remember to save the cleaning I do have to do for days when I don't have anything else.
Saturday, October 31, 2009
Festive Music
Halloween has always been my favorite holiday. Something about getting to dress up like an animal and having it be not weird, most likely. It's been several years since my last trick-or-treating expedition- I eventually admitted to having grown out of it, and when you can't eat the candy anymore (because there's soy or gluten in pretty much all of it) it kind of loses its purpose.
The other side of Halloween- the horror film, blood and gore, scary music, dead rotting people side- has never been something I've enjoyed. I think it has to do with the fact that these things tend to show up in my dreams, which are creepy enough to begin with without any encouragement, thanks. I could write horror films by simply recording my nightmares back before Xyrem. Also, being afraid has never been something I enjoy, even though I know people who actually like it. The weirdos.
All this week I've been watching tv- with all the horror movie previews- and I've ended up coming across the usual stupid fake skeletons in people's yards a lot. At the same time I've been sleeping steadily worse every night this week. So of course last night there were creepy rotting people all the heck over my dreams, and I kept brushing up against them on accident and feeling them- at one point I was swimming in an inky black cave that was completely underwater, and they were all over the floor, and there was a current in there that kept me from easily swimming out. It was a tiny part of a whole lot of complete nonsense that lasted all night, and besides that mostly wasn't creepy. But I woke up dead tired because I had spent all night in REMland instead of getting actual rest. I didn't dare try to sleep in because I knew it would just be more crazy dreams, so I ended up taking a nap right after breakfast instead. It took caffeine to get me through my class okay.
So I get to my class in the afternoon. It's Introduction to Audio, so it's basically about music. So of course our instructor thinks it would be really awesome to play us some creepy music so we can talk about what makes it creepy.
As soon as he announced this I started to tense up. The last time I got talked into watching a horror movie it was the music that really kicked my ass. I was creeped out for months after that. So even without the visual I knew I was pretty much screwed. Still, it didn't occur to me to just leave. I can be stubborn about these things in kind of a bad way.
From the first note of squealy, screechy music I was totally freaked out. And as I was expecting, even after it was turned off, it kept playing in my head. On the way home I blasted bad pop music, but when I got home and turned off the car it was back, screeching away in my brain where I couldn't escape from it. It took lots of happy music and watching Kung Fu Panda to finally get it out of there. So I went upstairs, feeling the inner peace and totally doing fine again.
I'm sitting next to the tv (with it off) eating dinner when my dad comes home and sits down. He turns on the tv, and there's the music again, in a stupid preview for yet another new horror flick. I ask him to mute it. He doesn't hear me. I ask him again. I finally yelled, and he heard me and muted it, looking like I was totally weird for being that insistent. And then he ends up watching this spoof horror movie- probably one of the Scary Movies- and it has the same damn music. I was so out of there. I grabbed my dog and ran for it. When I got downstairs I was shaking.
I decided I needed out of the house. So I got my dog leashed up and we went for a walk. As soon as we got outside I felt better. It's a cool, clear evening, and the moon is beautiful tonight. Walking down the street, looking up at it, I remembered why I like Halloween so much. There's nothing quite like walking around after dark under such a nice moon.
The other side of Halloween- the horror film, blood and gore, scary music, dead rotting people side- has never been something I've enjoyed. I think it has to do with the fact that these things tend to show up in my dreams, which are creepy enough to begin with without any encouragement, thanks. I could write horror films by simply recording my nightmares back before Xyrem. Also, being afraid has never been something I enjoy, even though I know people who actually like it. The weirdos.
All this week I've been watching tv- with all the horror movie previews- and I've ended up coming across the usual stupid fake skeletons in people's yards a lot. At the same time I've been sleeping steadily worse every night this week. So of course last night there were creepy rotting people all the heck over my dreams, and I kept brushing up against them on accident and feeling them- at one point I was swimming in an inky black cave that was completely underwater, and they were all over the floor, and there was a current in there that kept me from easily swimming out. It was a tiny part of a whole lot of complete nonsense that lasted all night, and besides that mostly wasn't creepy. But I woke up dead tired because I had spent all night in REMland instead of getting actual rest. I didn't dare try to sleep in because I knew it would just be more crazy dreams, so I ended up taking a nap right after breakfast instead. It took caffeine to get me through my class okay.
So I get to my class in the afternoon. It's Introduction to Audio, so it's basically about music. So of course our instructor thinks it would be really awesome to play us some creepy music so we can talk about what makes it creepy.
As soon as he announced this I started to tense up. The last time I got talked into watching a horror movie it was the music that really kicked my ass. I was creeped out for months after that. So even without the visual I knew I was pretty much screwed. Still, it didn't occur to me to just leave. I can be stubborn about these things in kind of a bad way.
From the first note of squealy, screechy music I was totally freaked out. And as I was expecting, even after it was turned off, it kept playing in my head. On the way home I blasted bad pop music, but when I got home and turned off the car it was back, screeching away in my brain where I couldn't escape from it. It took lots of happy music and watching Kung Fu Panda to finally get it out of there. So I went upstairs, feeling the inner peace and totally doing fine again.
I'm sitting next to the tv (with it off) eating dinner when my dad comes home and sits down. He turns on the tv, and there's the music again, in a stupid preview for yet another new horror flick. I ask him to mute it. He doesn't hear me. I ask him again. I finally yelled, and he heard me and muted it, looking like I was totally weird for being that insistent. And then he ends up watching this spoof horror movie- probably one of the Scary Movies- and it has the same damn music. I was so out of there. I grabbed my dog and ran for it. When I got downstairs I was shaking.
I decided I needed out of the house. So I got my dog leashed up and we went for a walk. As soon as we got outside I felt better. It's a cool, clear evening, and the moon is beautiful tonight. Walking down the street, looking up at it, I remembered why I like Halloween so much. There's nothing quite like walking around after dark under such a nice moon.
Friday, October 30, 2009
College Visit Car Trouble
Last night I was on a roadtrip. I had driven to another city to visit a college for some reason. I had just gotten finished with whatever it was I was supposed to do there and was completely exhausted. I was also hungry, so as I got in my car (it was exactly my real car for once) I decided I was going to go find a grocery store and get something to eat back at my hotel. I thought I had seen a grocery store on my way to the college so I thought I would try that.
I was having some weird driving issues. For one thing, my brake wasn't working as well as it usually does, so I had to be really careful. As I navigated the large and busy parking lot, I kept almost scraping cars when I turned around them, but then I would just get by without touching. It was pretty nerve-wracking, but I got to an exit and was just congratulating myself on not hitting anything when the car pulling into the same entrance misjudged and scraped into me. I heard this horrible scraping sound and my car shook. I sighed, put my car in park and got out.
The guy was actually really nice. He looked a lot like (but not exactly) one of the people who works at Petco and chats a lot while I'm checking out. I went rummaging around for paper to get his insurance information written down.
I was feeling pretty light-headed and confused because I was so tired and hungry. I looked at the cars. From what I had experienced inside the car, I thought I would just have a scrape along the side, but instead it was quite different. The front of his car had somehow smashed the back of mine, though it wasn't bad enough that I couldn't still drive it. His car looked really bad though. Pretty quickly a couple of people came to tow away his car and we moved out of the way by sitting down at this table that was randomly in the parking lot for some reason. This part of the dream got really frustrating because all I was trying to do was write down the man's information, but I would write his name only to lose track of my stack of papers and then not be able to find it again, or I would be trying to write his phone number and it would turn into crazy symbols so that I couldn't read it, or I would write something down and the wind would blow the paper off the table, and when I picked it up it would be blank.
I was convinced it was just me being confused and tired. I seriously didn't figure out that I was dreaming because I was too busy being worried that I wouldn't get the important information down. I told the man (and his father, who was suddenly there randomly) that I was hungry and that was why I was having so much trouble, and they started offering me various gluten-containing things which of course I had to refuse. Finally the man just wrote it all down for me and handed me the paper. I thanked him and went back to my car.
It was gone. Apparently it had been towed with the other car. I sat down on the grass, and out of nowhere my grandparents showed up. I explained to them what had happened and got in their truck, and we were on the way to the grocery store when I woke up. And was very surprised (and relieved) to find that it hadn't really happened.
I was having some weird driving issues. For one thing, my brake wasn't working as well as it usually does, so I had to be really careful. As I navigated the large and busy parking lot, I kept almost scraping cars when I turned around them, but then I would just get by without touching. It was pretty nerve-wracking, but I got to an exit and was just congratulating myself on not hitting anything when the car pulling into the same entrance misjudged and scraped into me. I heard this horrible scraping sound and my car shook. I sighed, put my car in park and got out.
The guy was actually really nice. He looked a lot like (but not exactly) one of the people who works at Petco and chats a lot while I'm checking out. I went rummaging around for paper to get his insurance information written down.
I was feeling pretty light-headed and confused because I was so tired and hungry. I looked at the cars. From what I had experienced inside the car, I thought I would just have a scrape along the side, but instead it was quite different. The front of his car had somehow smashed the back of mine, though it wasn't bad enough that I couldn't still drive it. His car looked really bad though. Pretty quickly a couple of people came to tow away his car and we moved out of the way by sitting down at this table that was randomly in the parking lot for some reason. This part of the dream got really frustrating because all I was trying to do was write down the man's information, but I would write his name only to lose track of my stack of papers and then not be able to find it again, or I would be trying to write his phone number and it would turn into crazy symbols so that I couldn't read it, or I would write something down and the wind would blow the paper off the table, and when I picked it up it would be blank.
I was convinced it was just me being confused and tired. I seriously didn't figure out that I was dreaming because I was too busy being worried that I wouldn't get the important information down. I told the man (and his father, who was suddenly there randomly) that I was hungry and that was why I was having so much trouble, and they started offering me various gluten-containing things which of course I had to refuse. Finally the man just wrote it all down for me and handed me the paper. I thanked him and went back to my car.
It was gone. Apparently it had been towed with the other car. I sat down on the grass, and out of nowhere my grandparents showed up. I explained to them what had happened and got in their truck, and we were on the way to the grocery store when I woke up. And was very surprised (and relieved) to find that it hadn't really happened.
Tuesday, October 27, 2009
Professional Porch Napping
This morning I actually slept okay for the first time in awhile. I had a cool dream in which I was travelling around inside a vast dormlike place via subway trains and buses, hanging out with two of my close high school friends. It occasionally made itself frustrating, but for the most part was a good dream. And after that I actually slept as far as I could tell when I woke up later than usual, feeling somewhat refreshed (or at least less run over than the rest of the week).
So I figured, since we were going to have a substitute in my class today and therefore it would most likely be shorter than usual, that today wouldn't be so bad. Maybe I could get away with two naps instead of like five, and by the time 7 PM came around I wouldn't be ready to keel over and give up on that staying awake nonsense.
Well, driving to class actually wasn't that hard for once, as I felt like I could pay attention without having to focus every ounce of brainpower on it. Class was fine for about the first half hour, and sleeping during the twenty minute break did help, though I got weird looks from my classmates again. But by the end of the three hour class I was pretty dead. Driving home was difficult and when I had finally pulled up safely into our driveway I just sat in my car for a few minutes, summoning the energy to open the door and get out.
I decided it would be a good idea to let my dog out into the yard for a few minutes and then take a good solid nap. My body decided, however, that that wasn't going to be soon enough. And I ended up falling asleep sitting on the front porch. It was at least ten minutes of nap and it was definitely not planned. I was aware for most of it, so it's not like I was completely out, but that was my first accidental nap in awhile. Though I still think it's kind of funny (add that to my entertaining list of strange places I've taken a nap) it really just highlights the trend I've been experiencing lately. The not so great for any future plans I might have trend.
At this point I'm starting to doubt everything I had thought about before- about how animation is really something that would suit me as a career. It's not that I don't like it or that I'm not good at it, but it requires energy. Which I don't have. And I really don't know what to do about this as my lack of energy seems to be getting alarmingly worse. My doctor is out of medications to add at this point, after the Ritalin made me depressed, and I'm pretty sure he's as frustrated as I am with the situation. We can't increase the Xyrem either; we tried and my side effects came back, and besides that my stomach can't really handle it anyway.
So right now I'm in a pretty angsty state of mind. I keep having to cut back on my daily activities in order to avoid completely flattening myself for days at a time, but every time I think I'm done cutting stuff out of my life I end up having to cancel more. I'm sick to death of being in this house, but leaving it takes more energy than I have to spare most of the time. I keep trying to decide what to do with my life, but everything I want to do takes more energy than I have, so I find myself stuck without plans at all. I just don't know what I'm going to do.
So I figured, since we were going to have a substitute in my class today and therefore it would most likely be shorter than usual, that today wouldn't be so bad. Maybe I could get away with two naps instead of like five, and by the time 7 PM came around I wouldn't be ready to keel over and give up on that staying awake nonsense.
Well, driving to class actually wasn't that hard for once, as I felt like I could pay attention without having to focus every ounce of brainpower on it. Class was fine for about the first half hour, and sleeping during the twenty minute break did help, though I got weird looks from my classmates again. But by the end of the three hour class I was pretty dead. Driving home was difficult and when I had finally pulled up safely into our driveway I just sat in my car for a few minutes, summoning the energy to open the door and get out.
I decided it would be a good idea to let my dog out into the yard for a few minutes and then take a good solid nap. My body decided, however, that that wasn't going to be soon enough. And I ended up falling asleep sitting on the front porch. It was at least ten minutes of nap and it was definitely not planned. I was aware for most of it, so it's not like I was completely out, but that was my first accidental nap in awhile. Though I still think it's kind of funny (add that to my entertaining list of strange places I've taken a nap) it really just highlights the trend I've been experiencing lately. The not so great for any future plans I might have trend.
At this point I'm starting to doubt everything I had thought about before- about how animation is really something that would suit me as a career. It's not that I don't like it or that I'm not good at it, but it requires energy. Which I don't have. And I really don't know what to do about this as my lack of energy seems to be getting alarmingly worse. My doctor is out of medications to add at this point, after the Ritalin made me depressed, and I'm pretty sure he's as frustrated as I am with the situation. We can't increase the Xyrem either; we tried and my side effects came back, and besides that my stomach can't really handle it anyway.
So right now I'm in a pretty angsty state of mind. I keep having to cut back on my daily activities in order to avoid completely flattening myself for days at a time, but every time I think I'm done cutting stuff out of my life I end up having to cancel more. I'm sick to death of being in this house, but leaving it takes more energy than I have to spare most of the time. I keep trying to decide what to do with my life, but everything I want to do takes more energy than I have, so I find myself stuck without plans at all. I just don't know what I'm going to do.
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